MRSA Superbug Forum

Welcome to the MRSA superbug bacteria infection open discussion forum UK. Please feel free to start a new topic or reply to any existing topics. No need to register to use these forums. Just feel free to share your experiences of MRSA, its causes, effects, symptoms, prognosis and hospital treatment etc.

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MRSA in the lungs
Posted by Mia
Last Reply December 12, 2017 at 18:57
Started July 10, 2004 at 21:03
My father has had recurring episodes of MRSA in his lungs for two years now, he's at the moment just coming into the third week of his stay in hospital this time round. The Vancomycin seems to ward the bacteria off for a while but it always comes back (usually after approx 6 weeks). I see so much on the news and in the papers about MRSA in open wounds but have seen nothing about it internally. Does anyone else have any experience of this? Any info would be greatly appreciated!

94 replies...

mrsa in blood stream
Posted by teri
Last Reply December 1, 2017
Started November 19, 2005 at 12:40
diagnosed this wednesday, my mum's condition has been up and down each day- dr's say she,s not responding well to the antibiotic. Where can I find detailed info on prognosis, as the roller coaster is difficult to relate to my sister living in canada.
Thanks

18 replies...

after effects of MRSA on the body
Posted by David
Last Reply November 30, 2017 at 22:09
Started October 20, 2006 at 14:57
My question is are there lasting effects on a person's body long after the MRSA is treated. Such as extreem tiredness, lack of energy etc.

164 replies...

MSSA infection
Posted by Vic B
Last Reply November 26, 2017 at 02:08
Started January 24, 2007 at 12:27
I caught the terrible disease MSSA in June 2005 after a spell in hospital for a simple problem. After 2 spinal operations and a long spell in hospital I am free of the disease but the after effects are still affecting me. IE I have very little feeling in the lower half of my body, except for endless pain. Is anyone able to advise me on what I can do? My GP is not able to offer any help, all I am told is that "the nerve ends are affected and feeling will return"But when!!! I feel that the NHS has abandoned me. HELP!!.

151 replies...

Who is to give us an anwer?
Posted by ZISIS KONTOGOUNIS
Last Reply November 23, 2017 at 09:56
Started November 23, 2017 at 09:56
We, the millions of candidate victims, but also maybe the CAUSE for
it, of Acquired Hospital Infections, or Urinary Tract or other
infections, or food poisoning, are anxious about the verdict of the
now ongoing (?) research project t by Health World Institutes, about
the critical question::
“Is toilet paper use related TO URINARY - ACQUIRED HOSPITAL
INFECTIONS- FOOD MICROBIAL CONTAMINATION, GENERAL INFECTIONS ? Are we
unintentionally disperse around the E. COLI and other microbes?
When somebody is using t. paper to wipe up, the cleaning is
incomplete. An invisible poop film, full of dangerous microbes
remains, which soon is VAPORIZED, so these microbes overwhelm the
near organs, especially in women and soon disperse to all house, and
of course to our food. So it is obvious that hand washing up is not
enough.
The same and worse it applies to hospitals, where patients are
weakened and unable to care about themselves properly. So the often
letha... read more

0 replies...

MRSA prognosis
Posted by Russ
Last Reply November 13, 2017 at 03:08
Started July 23, 2005 at 22:28
Can anyone tell me what my wifes prognosis might be? She is a healthy 44 yo wh no known health issues prior to back surgery and aquiring this superbug Mrsa. she had surgery on her back june 30th 05 and he wound was not healing and her temp got to 103 and she was in tremendous pain, we had to call an ambulance took her back to st anthony's in okc where she had the surgery they took cultures and her wound was starting to open back up and draining lick crazy. They went back in cleaning the wound to the spine took more cultures and put in 2 drains. they started vancomicin and gentamiacin after surgery. here we are waiting for the cultue results from her spine. what now?

30 replies...

can anyone tell me the smell of MRSA?
Posted by scard about misdiagnosis
Last Reply November 10, 2017 at 16:36
Started May 23, 2005 at 05:56
I had a tummy tuck in Dec, I got ascites from the wound not healing . the Plastic surgeon had to aspirate, but the cleansing technique he used was "lacking" shall we say ... I had a cyst on my ovary burst 3 weeks ago .. I hemorrhaged and almost died.
I have never had any female /ovary problems before..
I was referred to an oncologist who wants to do a complete hysterectomy..
since the ovary burst, I noticesd a sicky sweet discharge odor .. I told the Dr. about it .. she put me on flagyl for 1 week.. It went away in two days .. it is now 1 week after antibiotics finished, and the smell is back ..
I made the connection that although it is really strong now .. since the surgery in Dec I had a mild odor, but frequent baths kept it in check.. now the smell is terrible 2 hrs after a shower
DOES ANY ONE KNOW WHAT MRSA SMELLS LIKE?
also .. could I have it in my abdomen .. and not be running a fever or have elevated white blood cells? I am scheduled for the hyst.. right after... read more

8 replies...

Just diagnosed
Posted by Sarah Louise
Last Reply November 1, 2017 at 02:07
Started November 1, 2017 at 02:07
This aft doc called to say I have mrsa. Have
started antibiotics, nose cream and going
back to pick up body wash tomorrow. Have
had foot and skin on arm conditions for a
long time. Could cold sweats, tiredness and
feeling unwell, be symptoms of mrsa? Thank
you.31kw



0 replies...

Opportunity to Share Your Story
Posted by Marisa Browning-Kamins
Last Reply October 30, 2017 at 21:34
Started October 30, 2017 at 21:34
Have you recently undergone hip, knee, or spinal fusion surgery?
Did you contract a staph infection?

You are invited to participate in a research study exploring the
patient journey of people who have contracted post-surgical staph
infections.

You may be eligible to participate if:
• You are 50+ years of age
• You underwent a hip replacement, knee replacement, or
spinal fusion procedure within the last year, and contracted a
post-surgical staph infection.
• You are a resident of the United Kingdom or Germany

All participants will be reimbursed £115 to conduct a two-hour
long informational group interview via web conference to discuss
their patient journey. For more information, please contact us at
marisa.browning-kamins@clearviewhcp.com, or at +1 617 614 9675.


0 replies...

MRSA and Cancer sufferer
Posted by Marjorie Clare
Last Reply October 30, 2017 at 15:15
Started June 15, 2005 at 09:01
My mother-in-law was diagnosed with a breast bone tumour last October and has been progressively getting more and more ill over the last few months. In April she was admitted to hospital and her lung was aspirated and a drain attached to drain fluid that was building up. She became extremely ill during this process and we were told that she had had an infection for which they were administering antibiotics intravenously. She recovered and they sent her home from hospital considerably weakened and having lost weight.

Three weeks later she went to see her consultant and was immediatley admitted back into hospital. They carried out a further aspiration in order to drain off more fluid, which was required to be sent to a bigger hospital in the nearest city.

She was then transferred to the bigger city hospital and a CT scan carried out on Friday 3 June. On Monday 6 June the family was gathered together by the consultant and told that there was nothing more he could do to hel... read more

17 replies...

MRSA in Hip Joint Replacement
Posted by Vanessa
Last Reply October 28, 2017 at 06:52
Started April 19, 2007 at 10:25
My dad is 60yrs and a couple of months ago had a hip joint replacement. Everything was going really well and the pain disappeared instantly, then one of the dissolvable stitches didn't dissolve and got infected, they started him on antibiotics but after a while it wasn't getting any better and Dad started feeling a bit unwell, temperature etc. They put him into hospital straight away to open the wound and clean it out but found it to be full of pus to the joint and closed it up straight away to await the result of the blood test to find out what it was. Two days later after the first attempt to clean it out they went back in knowing it was MRSA and cleaned it all out, replacing some of the parts of the hip replacement as well. They had already started him on vancomycin and said that everything was looking good after they had cleaned it all up. Six weeks later Dad is still on the vancomycin (part of the way through they realised they weren't giving him enough! and upped his dose... read more

245 replies...

Long Term Effects of MRSA
Posted by Holli
Last Reply October 26, 2017 at 23:59
Started March 8, 2005 at 21:35
Hi,
I am 39 years old and contracted MRSA after an appendectomy 8 years ago. At first they had no idea what was wrong with me and screwed around giving me one worthless antibiotic after another. Then one of the smarter quacks decided they should culture it and find out exactly what I had. Viola! MRSA. Another surgery to drain infected site and 28 days in quarantine with vanco drip and rifampin cocktails were the prescribed cure. I was eventually released with a central line to administer vanco at home for another 14 days along with the rifampin and a visiting nurse who came twice a day to pack my wound. (woo hoo) After completeing my vanco at home I was told I was CURED! But, in retrospect, without a blood test how could they have come to this conclusion? So began my odessey!

First, it was a spot on the back of my leg that went completly numb. Then that leg swelled. Back to the hospital for doppler to make sure it wasn't a blood clot. I was told they had no idea why my leg ... read more

28 replies...

Mr Michael Booker given GMC Warning
Posted by BT
Last Reply October 23, 2017 at 20:39
Started November 22, 2007 at 20:36
Hello everyone

I'd like to tell everyone that sometimes it pays off to complain about sub-standard treatment to the General Medical Counsel. Mr Michael Booker, a gynaecologist at Shirley Oaks and MayDay Hospitals received a 5 year warning for leaving a girl in her early thirties with a savage hospital infection, necrotizing fasciitis (the "flesh eating bug") for a total of three weeks. Most people die from this within a few hours but she kept fighting for her life with no support from him. This was without a proper diagnosis - he assured her it was merely a haematoma and would get 'bigger before it got smaller", and offered her no painkillers, even though she was literally screaming for them. He even went on his annual vacation to the South Coast whilst she was being eaten alive. Necrotizing Fasciitis is a strain of MRSA, and there's no excuse for leaving anyone in so much agony for so long. On the 21st day, he came back from his holiday and wrote in her medical notes that he wa... read more

79 replies...

Chronic MRSA Sinus infections
Posted by Marin
Last Reply October 18, 2017 at 03:27
Started November 4, 2011 at 06:28
I have been having sinus problems since Aug 2008 after a flight home from Mexico. I now am recovering from my 4th sinus surgery done just 10 weeks ago. I had it done by Dr Roy Casiano from University of Miami. So far I think he did a great job, I haven't breathed this well in 2.5 years. I took Bactrim 3 weeks after this surgery, then Avelox for 2 weeks and Clindamycin for 2 weeks with bactroban sinus rinses mixed with saline in a neilmed bottle. They thought that I would be merely "colonized" after finishing all antibiotics that but the green, sticky/gooey nasal drainage returned right away. I cultured positive for MRSA yesterday and I am devastated. I think this MRSA has been there since my second surgery. I have lived on antibiotics July of 2009 and taken more steroids than I can recall. I started having this problem 3 years ago and averaged surgery every 9 months since the end of 2008. Now I have to choose between taking Zyvox orally 600mg twice a day with Rifampin 300mg twice d... read more

3 replies...

MRSA - diagnoses too late
Posted by Chloe
Last Reply October 17, 2017 at 23:04
Started October 17, 2017 at 23:04
My dad died at the age of 54 of MRSA on 26th September 2017. He was otherwise
healthy but had had a small procedure. They caught it too late. I told the nurses
and doctors that he wasn't very lucid DAYS before he passed. They didn't listen.
Once he got a temperature, they took some bloods and realised his liver and
kidneys had been failing for a while. But they still didn't know why. It wasn't until
his blood pressure dropped so low that they had to put him on life support in ICU
that they found the MRSA. But it was too late. His liver toxin counts were about 8
and his other organs were failing.

We made the decision to withdraw his blood pressure treatment and he passed
away.

The post mortem found the mrsa infection in his heart. They don't know how it
got in there. All that it says on his death certificate is multi-organ failure and
staph.

I know it's only been three weeks but I'm so traumatised and full of guilt for not
making the doctors listen to ... read more

0 replies...

MRSA Question (urgent)
Posted by Scott
Last Reply October 6, 2017 at 06:24
Started November 28, 2007 at 09:36
Hi.

I recently spent 5 days in the hospital with an MRSA infection on my leg. It was nasty and extremely painful. I was put on Vancamycin (sp?) and released after 6 days. It has been 3 weeks since that time, and I have just finished my last dose of Bactrim yesterday. The actual wound is healing up for the most part (was able to stop re-packing a few days ago), and now that I am off the daily antibiotics, my energy is starting to come back.

Anyways, yesterday I started to get this weird sensation in my mouth. Underneath my tongue, at the very back-left, an incredible soreness is developing. I mean, if I move my tongue at all or swallow - it hurts, bad. This is not a sore throat. I obviously know what that feels like and this is not that. My gums are a little swollen also, but that could be something totally separate. Who knows.

So, this leads me up to my stupid question. Can you develop an MRSA sore on your tongue or inner-mouth between gums/tongue and throat? If so, that's... read more

21 replies...

Long term MRSA
Posted by Warren Tune
Last Reply October 1, 2017 at 07:41
Started October 1, 2017 at 07:23
Hi all, very glad I found this website.

I'm going to get straight to the point. I have had ongoing MRSA
infections for the past 8 years, it started off at eczema which
escelated to staph infections (in my infant years) which became a
very stubborn and aggressive MRSA infections for the remainder and
possibly future of my life.

Previous infection sites include :
Feet, hands, neck, nostrils, pilonidal sinus, throat

Current infection sites include :
Feet, nostrils&sinus, heart, lungs, kidneys, bladder and another
pilonidal sinus

I have been battling for a very long time with IV antibiotics and
antibiotics which have been an absolute onslaught for my body and I
just cannot cope with taking medications anymore, they leave me
feeling like total ****.

My severe MRSA infection of the throat was 3 years ago, my throat
swelled up to almost 3x it's size, I was in a heavily altered state,
lost 35kg over 2 weeks mainly due to lack of eating and drinking,
fa... read more

1 replies...

LED Light Therapy an Almost Cure for Boils
Posted by Trish
Last Reply September 28, 2017 at 09:27
Started September 28, 2017 at 09:27
First let me say, I have never had issues with internal MRSA - just skin lesions. My heart breaks for folks with internal MRSA.

But I wanted to share what has worked for me. Things aren't perfect but bearable. I haven't been to this forum in a long time but I got lots of good ideas here.

My first MRSA boil was in 2007 but I haven't used antibiotics since 2013. I just got fed up with so many recurring boils and antibiotics. You can't live your life on antibiotics!!

LED light therapy has allowed me to get on with my life by quickly healing soft tissue boils. I have an LED array with Red, Blue, and Infrared light. I use all three on any spots of any kind that pop up on my skin. Usually, any MRSA boils are gone in a couple of days but I sometimes have stubborn boils that need more attention. I use essential oils in tandem with the light therapy. Oh - I also have an LED light array that looks like a toothbrush so I can use it in my nostrils. That thing has been a true mira... read more

0 replies...

PVL+ MRSA carriers?
Posted by Gaz
Last Reply September 28, 2017 at 09:14
Started December 7, 2016 at 02:51
Hi

I've been suffering recurrent soft tissue infections and am struggling to
understand what's going on so just thought I'd reach out for info from anyone
who can help please! i'll share my experience as well but the full detail is
difficult to cover.

Essentially have had a nightmare identifying this disease initially after being
hospitalised but have now had a diagnosis of PVL+ MRSA coming up to two
years. I've managed to decolonise successfully only once three months ago
but I just came out of urgent surgery for abscess removal and I'm keen to talk
with others re how to eradicate this and share what's worked/what's not.

Dr's have now put me on x2 antibiotics: rifadin & trimethoprim after I kicked
off when for the millionth time they threw Flucloxacillin at me even though
earlier tests thev'e done show resistance to this. They eventually phoned the
microbio dept. when I was in hospital and they advised the above regime.

I found the below govt. le... read more

2 replies...

book MRSA Secrets Revealed
Posted by Colin
Last Reply September 28, 2017 at 08:53
Started June 2, 2010 at 23:01
Has anyone bought the book MRSA Secrets Revealed or read this book ?
http://www.staph-infection-resources.com/

My son keeps getting mrsa and normal treatment does not seem to stop reinfection, I'm trying to find information on alternatives herbal etc but cant find any reviews on this book anywhere.

58 replies...

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