MRSA Superbug Forum

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Chronic MRSA Sinus infections
Posted by Marin
Last Reply October 18, 2017 at 03:27
Started November 4, 2011 at 06:28
I have been having sinus problems since Aug 2008 after a flight home from Mexico. I now am recovering from my 4th sinus surgery done just 10 weeks ago. I had it done by Dr Roy Casiano from University of Miami. So far I think he did a great job, I haven't breathed this well in 2.5 years. I took Bactrim 3 weeks after this surgery, then Avelox for 2 weeks and Clindamycin for 2 weeks with bactroban sinus rinses mixed with saline in a neilmed bottle. They thought that I would be merely "colonized" after finishing all antibiotics that but the green, sticky/gooey nasal drainage returned right away. I cultured positive for MRSA yesterday and I am devastated. I think this MRSA has been there since my second surgery. I have lived on antibiotics July of 2009 and taken more steroids than I can recall. I started having this problem 3 years ago and averaged surgery every 9 months since the end of 2008. Now I have to choose between taking Zyvox orally 600mg twice a day with Rifampin 300mg twice d... read more

3 replies...

MRSA - diagnoses too late
Posted by Chloe
Last Reply October 17, 2017 at 23:04
Started October 17, 2017 at 23:04
My dad died at the age of 54 of MRSA on 26th September 2017. He was otherwise
healthy but had had a small procedure. They caught it too late. I told the nurses
and doctors that he wasn't very lucid DAYS before he passed. They didn't listen.
Once he got a temperature, they took some bloods and realised his liver and
kidneys had been failing for a while. But they still didn't know why. It wasn't until
his blood pressure dropped so low that they had to put him on life support in ICU
that they found the MRSA. But it was too late. His liver toxin counts were about 8
and his other organs were failing.

We made the decision to withdraw his blood pressure treatment and he passed
away.

The post mortem found the mrsa infection in his heart. They don't know how it
got in there. All that it says on his death certificate is multi-organ failure and
staph.

I know it's only been three weeks but I'm so traumatised and full of guilt for not
making the doctors listen to ... read more

0 replies...

MSSA infection
Posted by Vic B
Last Reply October 14, 2017 at 20:44
Started January 24, 2007 at 12:27
I caught the terrible disease MSSA in June 2005 after a spell in hospital for a simple problem. After 2 spinal operations and a long spell in hospital I am free of the disease but the after effects are still affecting me. IE I have very little feeling in the lower half of my body, except for endless pain. Is anyone able to advise me on what I can do? My GP is not able to offer any help, all I am told is that "the nerve ends are affected and feeling will return"But when!!! I feel that the NHS has abandoned me. HELP!!.

149 replies...

Mr Michael Booker given GMC Warning
Posted by BT
Last Reply October 11, 2017 at 17:47
Started November 22, 2007 at 20:36
Hello everyone

I'd like to tell everyone that sometimes it pays off to complain about sub-standard treatment to the General Medical Counsel. Mr Michael Booker, a gynaecologist at Shirley Oaks and MayDay Hospitals received a 5 year warning for leaving a girl in her early thirties with a savage hospital infection, necrotizing fasciitis (the "flesh eating bug") for a total of three weeks. Most people die from this within a few hours but she kept fighting for her life with no support from him. This was without a proper diagnosis - he assured her it was merely a haematoma and would get 'bigger before it got smaller", and offered her no painkillers, even though she was literally screaming for them. He even went on his annual vacation to the South Coast whilst she was being eaten alive. Necrotizing Fasciitis is a strain of MRSA, and there's no excuse for leaving anyone in so much agony for so long. On the 21st day, he came back from his holiday and wrote in her medical notes that he wa... read more

77 replies...

MRSA Question (urgent)
Posted by Scott
Last Reply October 6, 2017 at 06:24
Started November 28, 2007 at 09:36
Hi.

I recently spent 5 days in the hospital with an MRSA infection on my leg. It was nasty and extremely painful. I was put on Vancamycin (sp?) and released after 6 days. It has been 3 weeks since that time, and I have just finished my last dose of Bactrim yesterday. The actual wound is healing up for the most part (was able to stop re-packing a few days ago), and now that I am off the daily antibiotics, my energy is starting to come back.

Anyways, yesterday I started to get this weird sensation in my mouth. Underneath my tongue, at the very back-left, an incredible soreness is developing. I mean, if I move my tongue at all or swallow - it hurts, bad. This is not a sore throat. I obviously know what that feels like and this is not that. My gums are a little swollen also, but that could be something totally separate. Who knows.

So, this leads me up to my stupid question. Can you develop an MRSA sore on your tongue or inner-mouth between gums/tongue and throat? If so, that's... read more

21 replies...

Long term MRSA
Posted by Warren Tune
Last Reply October 1, 2017 at 07:41
Started October 1, 2017 at 07:23
Hi all, very glad I found this website.

I'm going to get straight to the point. I have had ongoing MRSA
infections for the past 8 years, it started off at eczema which
escelated to staph infections (in my infant years) which became a
very stubborn and aggressive MRSA infections for the remainder and
possibly future of my life.

Previous infection sites include :
Feet, hands, neck, nostrils, pilonidal sinus, throat

Current infection sites include :
Feet, nostrils&sinus, heart, lungs, kidneys, bladder and another
pilonidal sinus

I have been battling for a very long time with IV antibiotics and
antibiotics which have been an absolute onslaught for my body and I
just cannot cope with taking medications anymore, they leave me
feeling like total ****.

My severe MRSA infection of the throat was 3 years ago, my throat
swelled up to almost 3x it's size, I was in a heavily altered state,
lost 35kg over 2 weeks mainly due to lack of eating and drinking,
fa... read more

1 replies...

after effects of MRSA on the body
Posted by David
Last Reply September 29, 2017 at 07:47
Started October 20, 2006 at 14:57
My question is are there lasting effects on a person's body long after the MRSA is treated. Such as extreem tiredness, lack of energy etc.

161 replies...

LED Light Therapy an Almost Cure for Boils
Posted by Trish
Last Reply September 28, 2017 at 09:27
Started September 28, 2017 at 09:27
First let me say, I have never had issues with internal MRSA - just skin lesions. My heart breaks for folks with internal MRSA.

But I wanted to share what has worked for me. Things aren't perfect but bearable. I haven't been to this forum in a long time but I got lots of good ideas here.

My first MRSA boil was in 2007 but I haven't used antibiotics since 2013. I just got fed up with so many recurring boils and antibiotics. You can't live your life on antibiotics!!

LED light therapy has allowed me to get on with my life by quickly healing soft tissue boils. I have an LED array with Red, Blue, and Infrared light. I use all three on any spots of any kind that pop up on my skin. Usually, any MRSA boils are gone in a couple of days but I sometimes have stubborn boils that need more attention. I use essential oils in tandem with the light therapy. Oh - I also have an LED light array that looks like a toothbrush so I can use it in my nostrils. That thing has been a true mira... read more

0 replies...

PVL+ MRSA carriers?
Posted by Gaz
Last Reply September 28, 2017 at 09:14
Started December 7, 2016 at 02:51
Hi

I've been suffering recurrent soft tissue infections and am struggling to
understand what's going on so just thought I'd reach out for info from anyone
who can help please! i'll share my experience as well but the full detail is
difficult to cover.

Essentially have had a nightmare identifying this disease initially after being
hospitalised but have now had a diagnosis of PVL+ MRSA coming up to two
years. I've managed to decolonise successfully only once three months ago
but I just came out of urgent surgery for abscess removal and I'm keen to talk
with others re how to eradicate this and share what's worked/what's not.

Dr's have now put me on x2 antibiotics: rifadin & trimethoprim after I kicked
off when for the millionth time they threw Flucloxacillin at me even though
earlier tests thev'e done show resistance to this. They eventually phoned the
microbio dept. when I was in hospital and they advised the above regime.

I found the below govt. le... read more

2 replies...

book MRSA Secrets Revealed
Posted by Colin
Last Reply September 28, 2017 at 08:53
Started June 2, 2010 at 23:01
Has anyone bought the book MRSA Secrets Revealed or read this book ?
http://www.staph-infection-resources.com/

My son keeps getting mrsa and normal treatment does not seem to stop reinfection, I'm trying to find information on alternatives herbal etc but cant find any reviews on this book anywhere.

58 replies...

MRSA in the lungs
Posted by Mia
Last Reply September 27, 2017 at 03:38
Started July 10, 2004 at 21:03
My father has had recurring episodes of MRSA in his lungs for two years now, he's at the moment just coming into the third week of his stay in hospital this time round. The Vancomycin seems to ward the bacteria off for a while but it always comes back (usually after approx 6 weeks). I see so much on the news and in the papers about MRSA in open wounds but have seen nothing about it internally. Does anyone else have any experience of this? Any info would be greatly appreciated!

93 replies...

s toilet paper use cause inhospital infections
Posted by zisis
Last Reply September 23, 2017 at 15:07
Started September 23, 2017 at 15:07
IS TOILET PAPER USE RELATED TO VAGINA- URINARY - ACQIRED HOSPITAL
INFECTIONS- FOOD MICROBIAL CONTAMINATION ? ( or, do you belong,
not knowing it, to those that disperse around the E. COLI ?)
When somebody is using t. paper to wipe up, the cleaning is
incomplete. A feces layer remains, which soon IS DRIED out and is
VAPORIZED, so dangerous microbes overwhelm the near organs,
especially in females (one to two women is having U.T. infection),
and finally contaminate all house objects and naturally our FOOD.
The result is INFECTIONS ARE SPREAD TO FAMILY MEMBERS.
The same and worse it applies to hospital wards, where obviously
weakened patients are unable even to use t. paper. It isnít
strange that in spite of all efforts up to now, in-hospital
infections are not uncommon. It is imperative for
Health Services and medicals to give a quick and clear answer to
the above question, so more effectively to face microbes at their
SOURCE.


0 replies...

minimum safe temperature to kill MRSA
Posted by austin haddock
Last Reply September 9, 2017 at 08:13
Started November 2, 2004 at 15:56
What is the minimum temperature required to wash clothes / bed clothes, worn / comming into contact with an MRSA infected person to kill the MRSA bacteria ?

20 replies...

Does the pain ever go away?
Posted by Lori
Last Reply August 17, 2017 at 04:17
Started August 17, 2017 at 04:17
I am an RN that was diagnosed with MRSA after arm fracture surgery. 8 surgeries
and 9 hospitalizations later, I am now about 6 months post-op. Still on Bactrim
until I have surgery again to remove the plate. It has been a horrible experience. I
am still having continued feelings of unwellness, fatigue and joint pain. For those
of you that have completed treatment for months or years, does the pain and
fatigue ever get better? My doctors don't seem to understand how debilitating
this has been.

0 replies...

Extreme joint pain after mrsa
Posted by Jim
Last Reply August 16, 2017
Started September 17, 2008 at 13:18
I had back surgery in May 08. Got out of hospital after 12 days and @ 2 weeks later back in the hospital getting my wound opened back up so they could irrigate down to my spine due to confirmed MRSA. Left the hospital after 2 days. @ 1 month later started having severe back and left leg pain again. Well, back in the hospital to get opened up for the 3rd time for the same thing. Left the hospital after 3 days with a pic line in my right arm. Had to do IV antibiotics myself for 6-8 weeks and then an addittional 6 weeks of pill antibiotics. Blood work all checked out fine, doctor took me off all meds and told me to return in 6 weeks for check up. @ 3 weeks later I am having severe joint pain especially in my fingers, toes and left wrist area. I told the doc about this and he said we are all getting old and that I am still in recovery from all this. Well, I never had this pain during the entire time I was on the meds or anything. I am just trying to figure out if the MRSA might have any... read more

23 replies...

mrsa in the throat
Posted by fran parry
Last Reply July 24, 2017 at 08:19
Started April 11, 2005 at 20:51
my husband has mrsa in the lungs he is in the late stages of c.o.a.d. he is very weak we have been told today a test has shown mrsa in the throat we have been told that it is thought that the sputem was contamiated from the throat can anyone help i cannot seem to get any more information

27 replies...

mrsa scars
Posted by lisa
Last Reply July 6, 2017 at 10:40
Started March 22, 2006 at 16:25
hi everyone, i am currently undergoing the treatment for my 3rd outbreak of mrsa, infact i just found out what i in fact have, the 2nd outbreak i had left ugly scars on my outer forearm, i would like some advice as to deminish the scaring, the current outbreak i am having is on my face. anybody with any ideas or suggestions please help me!

73 replies...

MSRA, Hep C, sepsis, bulimic, heart murmur
Posted by Nikki
Last Reply July 6, 2017 at 10:17
Started June 18, 2017 at 03:25
I am in the hospital right now being treated for sepsis shock because of my
issues with addiction but i just found out today I'm hep c positive, I also have
MSRA, a heart murmur, bulimia, anxiety and depression. I'm scared for my life
and for what the future might (or might not) mean for me... can someone please
advise me and inform me on what will happen and what to expect from here?!
They're giving me very little answers also as someone who is addicted to down I
am being treated for pain with hydromorphone IV so I'm very stressed about the
near future for me I'm only 24 years old...

1 replies...

MRSE
Posted by KayS
Last Reply July 6, 2017 at 09:48
Started July 5, 2017 at 01:22
Has anyone been diagnosed with MRSE? It is a staph infection that is
"Methicillin-resistant Staphylococcus epidermidis" as opposed to MRSA
("aureus" instead of "epidermidis"). The infection is only slightly different. I was
infected when I had major surgery on my shoulder. My doctor tells me that there
is really no solid test to determine if it's still there, but it's now been two years
and scar is still warm and reddish. I'm exhausted every day. My heart goes out to
everyone who has posted here!

1 replies...

itchy scalp and mrsa
Posted by sheri
Last Reply June 23, 2017 at 07:37
Started August 3, 2007 at 07:52
My daughter and I have just been diagnosed with mrsa. Before I started to get treated and since I have finished the meds I have had a really itchy scalp and what feels like allot of small bites! We have just moved to a new provance so I thought I was getting bit by some type of bug, but then it went away when I started to get treated for the mrsa and now that I'm done meds its back? This also happens along with fevers, headaches, stomache aches, general itching (mostly scalp, torso, and legs), fatigue and what feels like the start of a bladder infection that comes and goes but has not become a bladder infection. Does anyone else get theese symptons? Does it mean that the medication did not get rid of the mrsa? Any info would be appreciated! Thanx sheri

14 replies...

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