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after effects of MRSA on the body
Started by David
Posted: October 20, 2006 at 14:57
My question is are there lasting effects on a person's body long after the MRSA is treated. Such as extreem tiredness, lack of energy etc.
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Re: after effects of MRSA on the body
Reply #1 by Ruth Wollacott
Posted: October 20, 2006 at 17:58
Yes. Lots of odd things, tiredness, headaches, different taste perception.
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Re: after effects of MRSA on the body
Reply #2 by linda mccafferty
Posted: October 20, 2006 at 18:41
Dear David , my sister was infected with mrsa in her wound last year after surgery,she is always feeling poorly ,i believe this is the aftermath of mrsa , its alright saying you are now negitive on their so called swabs, BUT.....and a BIG BUT ......... i believe the aftermath of being infected in the first place, leaves lasting effects on a persons body long after the mrsa is treated , so does it ever leave the body........ this has been debateable on this site david, and with differing opinions, so who knows david is it a catch 22 or what ?
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Re: after effects of MRSA on the body
Reply #3 by Ruth Wollacott
Posted: October 20, 2006 at 19:11
Maybe it is similar to something like, for example, polio or measles; the infection has been eradicated but the damage caused whilst the infection is present causes long term effects, my friend's father had to wear calipers on both legs as a result of childhood polio, whereas measles can leave a person blind. (I am not suggesting there is a similarity between polio or measles and MRSA as far as the infection itself is concerned, just in the effects after the infection has been cleared which are permanent.) With MRSA, however, I think the long term effects are unseen and manifest in overwhelming fatigue, headaches and other odd, but unquantifiable, symptoms. Whether these turn out to be permanent side effects remains to be seen.

I ascribe James' different taste perception to the side effects of teicoplanin. It is well documented that vancomycin can affect the hearing; it must be possible for another anti-MRSA drug to affect another sensory perception - the sense of taste. I think there is a great deal about MRSA which is now only emerging as the scale of the problem grows.
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Re: after effects of MRSA on the body
Reply #4 by linda mccafferty
Posted: October 21, 2006
if you go to your G.P with these symptoms of headache,tiredness no energy,nausea, etc etc, the G.P runs tests, and if nothing comes back,you are labeled with M.E, these symptoms are very worrying to me ......... as by GOD only i know (you dont get took serious) , what chance have these people got if mrsa aftermath is causing a M.E phenomenon.
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Re: after effects of MRSA on the body
Reply #5 by Ruth Wollacott
Posted: October 21, 2006 at 09:01
I believe your perception is correct Linda; absent physical signs of illness, you are suspected of malingering. James has recently attended a meeting with the DSS doctor who told him that, notwithstanding that he is awaiting more surgery, this time on his ankle, it is agreed his knee is very unstable and gives way without warning, he becomes very fatigued after minimal effort, they are now preparing a report on his condition with a view to getting him back to work. The DSS doctor stated quite candidly it is the DSS intention to push him into 'any' job they think he can physically do, regardless of his suitability, regardless of the history.

The PCT have now stopped paying for his physiotherapy on the grounds that that the MRSA was not contracted in Havering but West London, therefore it involves a 'cross-border' payment and the ankle surgery required 'is nothing to do with the knee'.

These are supposedly medical professionals.
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Re: after effects of MRSA on the body
Reply #6 by Maria
Posted: October 21, 2006 at 18:57
My mum was never the same after she had MRSA she only survived a short time as she had terminal cancer, but the after affects of the MRSA left her exhausted. Of course we were told it was because she had cancer, but mum endured two years of surgery and chemotherapy, during that time she never lost to the will live or a zest for life, with one exceptional period - that is during the 6 weeks of her illness with MRSA - because of the way she was treated she actually asked to die during that period.

MRSA left my mum exhausted, depressed and terrified of the medical profession, something she never recovered from.
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Re: after effects of MRSA on the body
Reply #7 by Gloria
Posted: October 23, 2006 at 11:52
Hi, I do have every sympathy with MRSA sufferers but do people really think that you get different symptoms to a Staff A bacteria that is susceptable to penicillins?? i.e. MSSA. Other than the fact that some antibiotics will not kill the infection. There is no evidence to say that a person with MSSA feels these extra symptoms and they are basically the same bacteria.
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Re: after effects of MRSA on the body
Reply #8 by Ruth Wollacott
Posted: October 23, 2006 at 13:31
I believe the issue is what effects MRSA has on the body after the infection itself has been cleared. What after effects does an ordinary Staph A infection leave in its wake? I would be interested to know.

Or is this another version of 'MRSA is no worse than an ordinary Staph A infection'?
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Re: after effects of MRSA on the body
Reply #9 by debi
Posted: October 23, 2006 at 14:45
i had mrsa 2 yrs ago,does it effect the body? i am always tired ,just never been the same physically.when i had the infection i prayed to die, it was that bad, now nothing seems the same.
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Re: after effects of MRSA on the body
Reply #10 by Ruth Wollacott
Posted: October 23, 2006 at 16:55
That seems to be the experience of most people who have suffered and survived MRSA infection; even after the infection has been cleared it leaves a legacy of easy fatigue, overwhelming tiredness and little stamina, together with random pains, aches and other low level apparently unrelated inconveniences which were not noticed before MRSA infection.

As you know, my son was 19 when he contracted MRSA infection and although that was over three years ago, he now still spends much of his day sitting on his bed with his leg raised to combat general tiredness and specific knee pain. Other days, in addition to the tiredness etc., he may have a pounding headache and vomit - he never had headaches before MRSA and was very rarely sick.
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Re: after effects of MRSA on the body
Reply #11 by linda mccafferty
Posted: October 24, 2006 at 01:07
Dear ruth, i really feel for your son james, like my sister she has terrible headaches that she has to lie down in bed with,she's just finished antibiotics for yet again another urine infection , she has lost weight, and most things to eat make her feel nausea she said even looking at it on the dinner plate makes her feel sick my husband been colonized in nose, throat, and groin ,feels as if he has a head cold everyday, he also has a cough which he constantly clears his throat , i worry about this as his sputum test were positive ,but he still recieves no treatment .his swabs are back, but nurse said doctor will phone him ,this is 2 weeks since his swab was took ,i do believe that the effects live on in the body after mrsa, and are causing mass symptoms in people, which will not be taken seriously by G.Ps or DSS doctors .how can people hold down jobs who suffer these overwhelming symptoms this is a catastrophe in the making.
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Re: after effects of MRSA on the body
Reply #12 by Ruth Wollacott
Posted: October 24, 2006 at 08:18
Linda, thank you for your kind comments, which appear to succinctly summarise the situation - a catastrophe in the making. The DSS doctor has decided that James is too unfit to seek work, which is fortunate in that he will not be pressed into unsuitable work or lose any benefit, unfortunate in the sense that he really wants to be fit enough to get a job and get on with his life. It is hard to imagine an employer sympathetic enough to be prepared to take on an employee who would, through no desire of his own, be so very unreliable, and so what is the alternative? A life on minimal benefits, no hope of his own home, unlikely to be able to support a wife or children; not a rosy prospect aged 22.

A further complication - the PCT have withdrawn funds for his future treatment, apparently on the grounds that the ankle is not connected to the knee and that as MRSA was not contracted in a local hospital but one of the other side of London, it now involves a 'cross-border payment' to another PCT.

I am still interested in an explanation of #7 if anyone knows the answer. Thanks.
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Re: after effects of MRSA on the body
Reply #13 by Callie
Posted: October 24, 2006 at 17:24
When you say you want an explanation what do you mean?

Some people, myself included find it difficult to understand how MRSA would cause markedly different disease to MSSA when they are the same bacteria just resistant to different antibiotics.

I don't think its fair to say that people who have had MSSA infections do not suffer any of these long term symptoms as there arent any MSSA sufferers here to tell us. That does not mean that it doesnt happen.

It won't tell you in a text book about long term non-critical (thats not the right word but I can't think of the right one!) symptoms after infection, well none of the ones that I have read do!

Its quite difficult to directly attribute things like headaches, tiredness, loss or change of appetite to an infection unless its blindingly obvious and everyone who had that infection has those symptoms.

That is not to say that they don't happen. Some people might argue that some of the symptoms described could have occured anyway if the person has been through major surgery, or has had any type of infection (not just MRSA) because they are themselves a huge disruption to the body.

I think they usually tell you the risk of having a big op and what long term changes could occur? I wonder if these types of symptoms are mentioned?
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Re: after effects of MRSA on the body
Reply #14 by linda mccafferty
Posted: October 24, 2006 at 21:37
Dear callie,you are right to point out that there is no mssa sufferers to tell us how they feel after contracting mssa ,what is worrying is ......... how long will these people feel these symptoms for, people are reporting how ill they feel after contracting mrsa , it is coming to the surface now that all these people who are reporting this are NOT ALL MALINGERING ...... james wollacott is years down the road now after contracting mrsa , my sister is a year and a half down the road, many many others are coming on reporting these symptoms, i do realise callie that surgery can cause trauma to ones body and give them symptoms of the above , but my believe is that mrsa is leaving M.E symptoms behind,im not saying.... IT IS M.E, im saying the symptoms are very much like a person who is suffering M.E. symptoms of M.E, can be mild , or they can be debilitating, people who suffer M.E can have it for months, or years,and people can suffer it for the rest of there lifes , is mrsa aftermath going to be months, years , or the rest of there lifes.
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Re: after effects of MRSA on the body
Reply #15 by Ruth Wollacott
Posted: October 24, 2006 at 21:45
Callie, most people who suffer severe MRSA infection do not complain of after effects from the infection. The reason - MOST OF THEM ARE DEAD.

And the initial post is 'the after effects of MRSA on the body' not a comparison of the SYMPTOMS of MSSA and MRSA.

And my request for an explanation to #7 is designed to elicit whether #7 is yet another version of the official line that MRSA is no worse than any other ordinary staph infection. Actually, more or less what you are saying in #15.

Linda, thank you for your support. It is very easy to differentiate between those who actually know and those who have read it in a book.




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Re: after effects of MRSA on the body
Reply #16 by Callie
Posted: October 24, 2006 at 22:13
Well sorry I couldn't be of any help to you Ruth. I can see that you really don't want to listen to anything I have to say here.

I hope my words are of some/any help to someone else out there reading.
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Re: after effects of MRSA on the body
Reply #17 by Callie
Posted: October 24, 2006 at 22:15
Sorry if that came across as rude but I was only trying to help.
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Re: after effects of MRSA on the body
Reply #18 by Ruth Wollacott
Posted: October 24, 2006 at 23:34
I am also sorry if my posts come across as rude.

Re the after effects of MSSA, Leslie Ash's story has been quite widely reported, also that she is to receive 1m in agreed compensation. This has been reported in a couple of different national papers but it has been impossible to find out which solicitors have negotiated this deal.
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Re: after effects of MRSA on the body
Reply #19 by Hazel
Posted: November 17, 2006
i am really pleased but sad that other people who have had mrsa do in fact suffer from the same after effects as i do .I was led to belive by my gp that my problems where all in my mind , so as from today he is is no longer my gp i will find a new one who will listen to me and hopefully solve or at least help me
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