MRSA Superbug Forum

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Posted: June 9, 2007 at 16:22
l have now got a supra pubic catheter as l am spinal injured. l have had mrsa in my urine for months with out any treatment, l had to use the Hdrex scrub and cream and powder before my operation which was in May. The nurses are coming into dress my wound every day still and took a swab, now l have been told l have mrsa and Pseudomonas. My gp has given my Erythomycin 250mg 4x day plus more Hydrex and Bactroban. l am a diabetic type 2, and not feeling very well at all also getting a bit scared of keep catching this bug.Does anyone know what the treatment is for the Pseudomonas please. l have to go back to the hospital at the end of this month to get my s/p changed and l am dreading it. l feel so angry and upset.
Reply #1 by Maria
Posted: June 9, 2007 at 18:35
Hi Silverlucian

I think your situation sounds very similar to the one described by Lesley in her posting about her brother. Not being told enough information is disturbing for the patient and the sooner the medical profession get this into their heads the better.

The Pseudomonas will be treated with anti-biotics, and the MRSA should also being treated this way. I think you should insist that the GP/Consultant looking after you should set out a care pathway for you that outlines every treatment they are going to give you, this should be happening as you are due to go back into hospital. Show them this posting if it helps.

Care pathways are a plan and should outline in detail what the symptoms are and what is being done to treat them. This is something that any patient should have and if the GP/Consultant is not forthcoming in telling you what they are planning then I would suggest making a formal complaint.

Try to let them know how anxious this is making you before going down that route and ask to discuss your care pathway. I hope you get the answers you need.
Best wishes
Reply #2 by silverlucian
Posted: June 11, 2007 at 18:54
Thank you for your reply Maria, l have printed it off and l will be getting intouch with the hospital infection control team and will be asking them for some information as to what l need to do etc.
As for my gp l would have to wait weeks before l could possibly get an appointment and l really don't hold out much hope in getting much help from them. Sounds bad l know but in December when l first had MRSA one of the gp's never even told me l had it, just told me l was resistant to some antibiotics. Eventually l was told because my urine became infected and stunk so bad l thought my insides were rotting honestly.
Now l have it yet again and this time l am angry with the hospital and their lack of caring about my health.
l am very proactive where my health is concerned as l aqquired a spinal injury at the very same hospital hence the bladder and bowel problems l now have.
l have a condition called Cauda Equina Syndrome, and this is a rare condition, l had spinal decompression at L4/5 S1 Level and got a Dura tear, so this is why l now have to have a supra pubic catheter, as my bladder doesn't work properly anymore.
Can you tell me if l need to go and get the powder for my armpits and groin because the gp never prescribed it, just the Hydrex and the Bactroban on Friday.
My wound is still very sloughy and red and sore.
Any info would be appreciated.

Reply #3 by missy
Posted: June 11, 2007 at 19:02
What antiobiotics have you took? You should be on the big guns for your type of situation..
Dont wait to see ID dr. You should see one ASAP ...Yell scream ,talk to higer ups if needed. I dont know what state you live in , so there are differnt procedures..
Good luck. My husband had a very similair situation he has been out of hospital for 4 months but he is one 3 differnt antibiotics total of 6 a day..
Looking forward to your progress.

Reply #4 by Maria
Posted: June 12, 2007 at 01:48
I agree with Missy, you need to insist that you get an appointment with your GP to get the treatment you need.

It may also be worth talking to the pharmacist at your local chemist about getting the powder you are referring to. My mum was prescribed Sterzac powder, I'm not sure but I think you may be able to get this from the pharmacy. I would insist on that appointment with the GP though, is the district nurse visiting to treat you? I think you need to be insistant about your wound, if necessary visit your local walk-in centre. Contact me if you need more information my email address is
Reply #5 by silverlucian
Posted: June 15, 2007 at 17:04
Hi Missy, and Maria,
To my suprise my gp asked me to come and see her yesterday l was worried because it was for the results of my blood test.All she told me was that my Pottasium level is low, and she went through the list of meds l am on.
What suprised me the most was she never said very much about my mrsa at all. But did tell me that pseudomonas was a nasty bug and that when l have finished the Erythomycin l am to have another swab taken to see if the pseu, and mrsa has gone.
l did ring the Infection control team at the hospital where l keep catching all these bugs and asked them what are they doing about it all, and really it was a waste of my phone call.
l have spoken to the incontinence specialist nurse at the hospital who knows me really well and told her that the gp gave me the Hydrex wash etc, and she told me not to wash with it as l dont have mrsa on my skin, it is in my bladder and my wound.
The nurses come into dress my wound everyday and tell me it is looking much better.
l have to have another blood test and swab as l mentioned so will let you know the outcome.
Thanks for your support.
By the way Missy l am in London

Reply #6 by Maria
Posted: June 15, 2007 at 23:12
Hi Silverlucian
I am sorry to hear that you are getting little information from your infection control team, if you are not satisfied then I would suggest writing a formal letter of complaint to the Chief Executive copied to the Director of Infection Control. They really should have a care pathway in place for you and this would enable them to discuss all your concerns with them.

We have had a good response from hospital trusts in relation to some good practice on care pathways. If you would like to email me in confidence I can send you a copy of the care pathway for the treatment of MRSA, I have it electronically, whilst it is for the trust to decide whether they use it, not telling you about what they plan to do to treat your infections is clearly causing you a good deal of anxiety, and on that basis they really should sit down and discuss this, as they have a duty of care to you.

It would be interesting to know if your hospital trust is one of the hospitals that will be receiving a spot check from the Healthcare Commission in the coming months, as clearly if the infection control team is unwilling to discuss the treatment of MRSA with a patient then they really are failing in their duty of care.

Good luck, and remember to email us if you need any help.
Reply #7 by john,j
Posted: June 16, 2007 at 06:47
Hi Silverlucian,You need to see a Vascular specialist,who will recommend(Oilatum plus) this is a baterial skin cleaner.PSEUDOMONAS is another little bug that resides on us all and is on the surface of the skin.As for the MRSA well ,clean every thing and i realy mean every thing, change clothes,bed linen,the list goes on,avoid contact with nurses they are in my opinion carring this bug from patient to patient,finally keep clear of hospitals.I have been down this road and suffering the conseqences, my wife has had MRSA and PSEUDOMONA ,The treatment worked for her and cleared the Pseeudomon up, but i suspect MRSA is still there,once acquired you got it for good,take care and as the saying goes "TRUST NO ONE" no one will take responsiblity for fear of libel action.
Reply #8 by silverlucian
Posted: June 18, 2007 at 13:32
Hi John,
Thanks for your info, but can you tell me why l need to see a Vascular specialist. l think l can get the Oilatum plus on prescription from my gp if l ask them, l am getting very down about all of this now l can tell you.
l was supposed to have had a swab taken from my wound today but the nurse forgot to bring the swab as l have finished the course of antibiotics now and need to see if the Pseudomonas has gone from my wound yet.
l am very carefull with my handwashing but does this mean l have to launder my clother seperatly as no one has told me
this John.
l really don't want to risk infecting any of my kids, especially as one of my daughters is 7 months pregnant also.


Reply #9 by ladyk
Posted: June 19, 2007 at 02:02
silverlucian -

I am sorry to hear your medical situation is compounded by these virulent bacteria. Since it appears we have some things in common, I felt compelled to write you, and let you know what has helped me over this past year where I too contracted these nasty bacteria. I wonít get into many personals of my medical situation except to say on a Sunday afternoon my husband and I sought the help of our local hospital for a soft ball sized, extremely painful, yet isolated swelling. After two emergency room doctors each took a one hour turn cutting deep into me, and after their two misdiagnosis, I refused a trip to the operating room where they were going to cut out the ďtumorĒ which was stated to have been there for quite some time. Of course we knew differently as I was in good health with no sign of tumor of which would have been quite hard to miss considering its size. I was sent home to tend this lengthy, open, bleeding incision. A specialist was seen after cuttings on day three, and refused to culture the surgical wound. No cultures were taken until five days later by a forth doctor who I sought independently for the specific reason of having a culture of incision done. Results: Pseudomonas within the surgical wound, followed directly by a serious lesion outbreak. By way of needle stick culture the lesions were determined to be MRSA.

I am also a well controlled borderline diabetic. This immune compromising factor of diabetes does play a role in our inability to not only ward off invading bacteria which bombard us daily from our environment, diabetes also plays a role in compromising our healing ability. I have literally seen a dozen physicians from two ER doctors, three general practitioners, three OB/GYN specialists, two infectious disease specialists, a gastroenterologist, and my endocrinologist concerning how these bacteria will impact my diabetes. In following all their advice I also have ingested a dozen antibiotics as doctors saw fit, in attempts to kill Pseudomonas and MRSA. Nothing worked including Vancomycin. A word to the wise... be aware that aggressive conventional antibiotic therapy can cause you to contract yet another bacteria of superbug strength called C-diff (Clostridium difficile) by ridding our bodies of all bacteria both good and bad, which in turn provides the perfect environment for the destructive bacteria to take hold. I acquired C-diff in this way. And then there were three!

I can not emphasis how extremely ill I was with toxins from these bacteria reaching lethal levels within my system. After six months most all doctors gave the look of a ďdeer caught in headlightsĒ when bluntly asked if I was going to die. Perhaps most honest was one doctor who told me he just could not fix this for me. With the help of family and this message board along with many many months of research (since I was literally unable to do anything) I got my affairs in order. My situation was dire.

Then I came across a post that perked my interest explaining how one was able to overcome to a degree by using this particular immune supporting supplement. Since I believed I had no alternative but to wait for these bacteria that had taken me down to now take me out, I didnít have much to lose in trying it. So I did. It took about a month for the level of supplement to start making a difference. I can honestly say it has. Iíve regained a fair amount of strength, a bit of my normal tenacity~~~ but more than that I was brought back to a fair amount of well being, which in turn gave me the will to try and fight these bacteria. I still have down days over a year later, and still have a second medical procedure under general anesthesia to be done in hospital in one months time due to the C-diff, but the down times are in between days where Iím able to function to where most things I desire to accomplish Iím able to before exhaustion sets in. With a rest I do regain strength again. I have not taken another antibiotic in the past eight months, and although Iíve been strongly encouraged to by doctors who only believe in conventional medicine alone, I have refused. My MRSA outbreaks have greatly minimized, and now that Iím lesion savvy Iím able to take care of them with healing in a few days. This product is a natural antibiotic called AlliBiotic CF. I take one in AM & PM. Itís the best US $11.25 for a month supply Iíve ever spent. You can find information on this product at:

A few suggestions:
Be sure by way of diet and meds your diabetes is well maintained without great blood sugar fluctuations.

Be sure catheter care is routinely maintained to exquisite (gloved) standards as you have an open avenue for such bacteria to continue traveling to and fro. Your urinary tract (kidneys, bladder, urine, etc.) should be closely watched for ongoing/progressive infection considering you have an indwelling catheter and urinary tract infections (UTI) are already common place.

Rebuild your immune system to optimum, affording your preprogrammed immune systemís biological role the ability of support in warding off such invading bacteria.

My intention for writing is that this helps to give you a bit of hope in knowing there is something you can do to assist yourself in having a greater feeling of well being and attempt to get these bacteria in check where most often conventional antibiotics have been known to fail those of us fighting superbugs. If I can help further please donít hesitate.

PS Please do take precautions as these bacteria hold the contagion factor and are easily spread by way of cross contamination such as your contaminated hands touching wounds, catheter, urine, etc. followed by your touching a chair rail for instance... which in turn is touched by another who may have the slightest of skin openings from which they will become infected. Wash your hands endlessly, if unable to wash with soap and water use hand sanitizer. Do not put your fingers in your nose, as MRSA colonizes in our nares. Also be aware when you put your fingers in your mouth that some bacteria are transferred internally in this manner. Wear gloves when handling catheter, urine, emptying catheter. Your clothes/linens, should be washed separately in hot water, dried in hot dryer, routinely bleach your sink, counters, toilet, shower, etc. donít share razors, towels, personal items.

Best wishes,
Reply #10 by Simon
Posted: June 20, 2007 at 08:30
Ladyk's advice is excellent, particularly in relation to the catheter care, so many 'professionals' do not have the faintest idea about the 'esquisite' standards described. A lot of us on this forum will have been infected because of the lack of attention to indwelling devices and the lack of care shown.

Good luck Silverlucian
Reply #11 by Maria
Posted: June 20, 2007 at 22:00
Simon I absolutely agree about Lady K's advice, if some of the people in the medical profession adhered to exquisite gloved standards for invasive procedures many of us would not be enduring and witnessing the avoidable infections that are happening.

The advice on hygiene is also something the Department of Health could include in their training manuals and toolkits, but should we really be having to say all these things to the medical profession - isn't this just common sense!

We can all follow this advice and most of us with any experience of suffering from healthcare infections do, but we are still at the mercy of the NHS when it comes to keeping our environment in the healthcare setting hygienically sterile and safe.

Reply #12 by silverlucian
Posted: June 23, 2007 at 21:44
Hello Maria,
Many thanks for sending me the information about the care pathway. l printed the 10page document re the hospital.
l will be asking my urologist just what he intends to do about my long term MRSA in my urine, although it doesn't cause me any problems it is still infected and not nice to know l have it.
As for the Pseudomonas and the MRSA in my wound. The nurses are coming to take a swab on Monday, l did ask them to take it last Monday, somehow it wasn't taken.
l have an appointment at the dreaded hospital on Friday to have my catheter changed, and l am dreading it.


Reply #13 by silverlucian
Posted: June 23, 2007 at 22:58
Hello Ladyk,
Thank you for your post to me. Ladyk l am with you on the diabetes not exactly helping us to heal and l do try to keep my sugar levels good.
l am sorry to that you have had all three of the nasty bugs.
The other week l had a bad stomach for the whole week and the nurse told me me she thought l had C.Diff, and wanted me to do a stool sample. But l recovered before that was needed thank goodness.
Ladyk l live in London so l wont be able to order the meds you take to keep you healthy. But thanks all the same for taking the time to give me all your positive info.
bless you and l wish you all the very best in trying to recover your health.

Reply #14 by john,j
Posted: June 26, 2007 at 06:06
Hi silverlucian ,john here, in reply too why you need to see a vascular specialist, he/she will be able to evaluate It properly,its the blood supply that can carry the infection to other parts of the body,plus he will not tell you lies unlike some others,you may be better off getting a private consultation it may cost a couple of hundred but well worth it. On the cleanliness issue ,wash all linen on hot ,bleach floors,hooover carpets, (i replaced mine, then put plastic covers on floor and plastic covers over cushions , this may seem drastic measures but it does work. Other people to see , are infection control, skin specialist and if you can a microbiologist. Take care J,J
Reply #15 by Lisa Brady, Ruislip, UK
Posted: March 16, 2008 at 14:48
After saying to us for a short while that she was simply feeling cold and couldn't warm up (an unusual comment for her but she was a lady of a certain age) Our well-controlled diabetic 71-year-old Mum was rushed into Northwick Park Hospital in Harrow on Boxing Day 2007 with a spiking temperature, violent shakes and extreme pain in all her muscles (after Harmoni sent her away with a chest infection!!! I beg you, DON'T EVER USE THEM) to be told by the A&E doctors that she had pneumonia and would have to stay in. The next period of time saw us being told she had 'a bug in her blood' called Pseudomonas and a succession of IV antibiotics would be being administered 4 times a day. They sent her home after only 1 week (Fri 4 Jan!!) as they needed the bed, but I had to get her back into A&E that same evening; she was back to 'square one' with exactly the same symptoms. This time, she was put into isolation and the IV antibiotics (Imipenem, Teicoplanin and Tazocin) were re-commenced. It was all very draining for us but Mum's spirits were good at that time.

The doctors were trying to find the right IV antibiotic to wipe out this bug but as no time did they tell my brother and I how deadly this could be... In a matter of just two more weeks (weekend of 19/20 Jan), this 'bug' managed to get into her heart cavity and and literally eat away her Aortic Valve with no option but to replace the valve - infective endocarditis. Sadly, her lungs were also filling with fluids at the same time, drowning her. We needed to move her to the Royal Brompton Hospital in central London to get the heart surgery done but her breathing was so bad, the ITU team couldn't move her for 1 day + night, so we stayed with her to keep her calm for the whole of the Monday/Tuesday morning. During that time her brain was starved of blood & oxygen, causing massive and irreversible brain damage. Consequently, my brother and I were just left with no option but to hold her hands until her heart stopped some 16hrs later, 8.20am on Wednesday 23 Jan.

At no time were we advised of the virality and strength of this Pseudomonas bug - we'd never even heard of this until Mum's infection. I asked question after question while Mum was with us, wanting to understand what we were dealing with - believing they could help us - but they weren't forthcoming. I wish we had been forewarned and that the hospital in question hadn't been so 'relaxed' about the whole situation until things had all moved on too quickly for anyone to save Mum.

If anyone has had a similar experience, please let me know but I hope to God that no-one goes through what our family has. If you do, please push the hospitals and doctors for more information and don't let up. Take care anyone who reads this. Lisa B
Reply #16 by Sam
Posted: March 16, 2008 at 22:37
Dear Lisa
So sorry about your mum. This is so tragic, Pseudomonas is something that most of us can fight off, but like any infection if our immune systems are suppressed it can have severe consequences. Please accept my condolences for your loss.
Reply #17 by Vicki
Posted: November 28, 2012 at 20:59
After having MRSA nasally last yr I felt that the little cut I had on the opening of the left
nostril indicated it was back, 3 wks ago. ENT specialist said probably not but did a
check. Sure enough it is back and so is a case of pseudomonas. I am uber vigilant with
hygiene. What is wrong with me and why do I keep getting these wild infections?
Havent been sick or hospitalized. I am beyond frightened, feeling like a leper. Im taking
nasal antibiotic ointment, Cipro (for PM) and Bactrim for MRSA. Ive been healthy or so I
thought! Will someone/ can someone help me to understand this?
Kind Regards,
Reply #18 by Dena
Posted: February 3, 2013 at 01:01
I was told i had mrsa back in July 2012, from the lab work. I was taking BActrim, and then just a week ago, after having a culture and blood work done, i was told i had a scant growth of pseudomanas, but nothing was said or reported about the mrsa. My doctar has me on 500mg of Cipro for 10 days. Is this common treatment for pseudomanas, and is my mrsa gone? The lab report didn't show mrsa, so i'm a little skeptical. Also, how did i get pseudomanas while i was taking a strong antibiotic (800mg sulfameth/Trimeth)? Is this common?
Reply #19 by Ana Maria
Posted: February 7, 2014 at 07:01
I believe that the person should begin with detoxification, fortifying the immune system by optimal nutrition observing the rules of right combinations of foods, in order to obtain perfect assimilation of each nutrient you eat, and natural healing compounds i.e. illicitin (from garlic), ozone treatments, organic raw honey and baking soda, nucleotides, strong probiotics, Nature's Pearl number one antioxidant, extraordinary hygiene and faith in God to start the healing process. God's blessings.
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