MRSA Superbug Forum

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My sister with MRSA and Steven Johnsons
Posted by Kyle
Last Reply April 5, 2012 at 03:09
Started March 27, 2012 at 08:45
Hi my sister has got MRSA and steven johnsons (a reaction to the medication for MRSA that infects the mucous membranes)
She has it in her eye and behind her eye and inside of her head (but not in her brain yet)
She's currently on a breathing machine as the steven johnsons is making it hard for her to breathe. Im really worried about her and I dont know alot about this disease and if it is fatal. If anyone could give me some information about what to expect from now or if you know if it may be fatal i would be very appreciative.
They have had to cut most of her eye lid off and have done multiple surgeries in her eye to remove the MRSA as it gets worse. She has a mass in her brain that seems stable and the MRSA has gotten into her skull but has not developed into her brain yet.

1 replies...

how do you come to terms with having MRSA????
Posted by sad mommy
Last Reply April 5, 2012 at 03:02
Started April 2, 2012 at 02:24
My 5 year old son and myself have been dealing with MRSA for about 6
months now. We are both on our 3rd round of antibiotics and I'm scared
to death of this! I'm so depressed. I feel so alone. I can barely get
out of bed in the morning because I'm so sad and rundown. My son
doesn't really understand why I am crying all the time. He is always
commented about when the MRSA goes away..blah blah...and that makes me
even more sad because it's not going to ever completely go away.

How do other parents get through this on a day to day basis?? I just
can't imagine dealing with these boils for the rest of our lives and
then what if we become antibiotic resistance??? And all the extra
cleaning and laundry is exhausting being a single mom!! If it was just
me that had MRSA I think I could deal with it but it kills me that my
5 year old little boy has it too :-( What kind of life will he have

Plus now I will never be able to get married bc who would want to ... read more

1 replies...

Posted by Mary
Last Reply April 2, 2012 at 13:16
Started March 1, 2005 at 08:23
I am confused. Is MRSA the same as HIV? If not which is more serious?

11 replies...

Posted by Nick
Last Reply March 31, 2012 at 20:17
Started December 7, 2005 at 20:26
One year ago I went to sleep with a pimple on my leg and when i woke up my calf was filled with puss. when i went to my doctors he told me it was a spider bite. I was hooked up to a IV and stayed in the hospital for a week having my leg drained.Now I get these all the time. I have black scars all over my body. Right now I have about eight on my inner thighs. I feel like crap all the time. My wife is five months pregnant and she dosent even want to come near doctors have any answers.If anyone has any advice on how to live with MRSA I would love to hear it.

30 replies...

CA MRSA epidemic in the US
Posted by Tucker in Seattle
Last Reply March 28, 2012 at 16:33
Started October 13, 2005 at 22:27
I live in Seattle, Washington in the USA. I got community-acquired MRSA in June and have been fighting it ever since. I'm on sulfameth. It seems like every time I have one abcess cleared up, another one forms. So far it's only infected the skin on my legs, but I am seriously worried about the PVL "toxic shock" possibility.

What's interesting is every doctor I've been to with this has said the same thing: this is an epidemic in our region. Yet there has been no coverage on the news as far as I know, and even the attitude of health professionals seems very lax about it--they act like it's no big deal. It seems that the UK is at least taking this threat seriously.

8 replies...

Help with results and advice needed...
Posted by Eileen Farrell
Last Reply March 27, 2012 at 09:00
Started March 21, 2012 at 14:06
Hi all,
I am looking for some advice and help from people who are sussed in
the world of MRSA and Staph Infections. My son got an infection from
IV site, the cannula was in hand for 47 hours and was used for fluids
for one night. Within 1 hr of getting cannula removed his hand was
red,hot,swollen and infected. We got a swab of area done and results yesterday showed he had Staph Infection. The doctor that gave me the
results wasn't very clear (I couldn't understand him on phone) My son
has been prescribed flucloxacillin, we are meeting doctor tomorrow for
I want the doctor to explain to me in detail what a Staph Infection is
but I also want to know the difference between MRSA and SA is. I know
that doctors are very sketchy on details and will deny responsibility
that my son contracted infection in hospital.
Can anyone tell me what I should be asking the doctor,what tests I
should request etc.? Basically I want to go into this meeting armed
with the... read more

3 replies...

caught from clothes?
Posted by Mary
Last Reply March 25, 2012 at 13:02
Started November 3, 2011 at 17:55
My father died in hospital not of MRSA, but he did have MRSA. Although I was advised
by nurses to use apron and gloves, I couldn't bear to watch him die and not hold his
hand without wearing gloves. Once he had died, I kept a pyjama top of his and used
to hold it to my face to remember him, it kind of smelled of him.
Now, 5 years on, I am worried I have caught MRSA. I have recently had two episodes of
cellulitis and also seem to be getting boils on my back. How do I get a test? Is it as
simple as going to the doctor and telling him what I've just written here? (I am in the
UK). Thanks.

2 replies...

Prognosis of my sister with MRSA and Steven Jo
Posted by Kyle
Last Reply March 24, 2012 at 11:28
Started March 24, 2012 at 11:28
My sister has MRSA located in her eye and inside her skull but not yet to her brain (they say its stable). She is a healthy 23 year old. She has now developed Steven Johnsons syndrome from a reaction to the drugs they were giving her so they are treating her as a burns patient now aswell and has put her on a breathing machine as the steven johnsons has gotten into her mouth and lungs.
Im trying to find out what her prognosis may be for this? Its very serious and I dont want her to die but i want to know the facts.

0 replies...

Posted by Chris
Last Reply March 20, 2012 at 22:35
Started March 20, 2012 at 22:35
Hi to all of my fellow fighters of MRSA. I went to the hospital with my excellent
orthopedic surgeon and had a total right hip replacement. I was in the rehab and
about 10 days after surgery I was rushed to the hospital running a fever and my
wound site was so red and painful. The surgeon opened the wound and flushed
out the wound and back to the ICU and on infusion antibiotics for a month. Went
home and seemed to be getting better and 1 month later I had my 2nd bout. I
have had 4 bouts and am writing you from the hospital. So far this has only
presented itself as a surface problem but I am down and out again. Has anyone
had the same problem? Would love to know. I feel alone and sad.

0 replies...

MRSA transfer
Posted by cathyj
Last Reply March 13, 2012 at 19:28
Started March 3, 2012 at 21:05
My biggest fear out of this whole thing is passing this thing on to
others. How easy is this to pass to someone else. When I have an out
break should I have my husband and I sleep separately or is it okay if
it is covered? Some one told me as long as I was not oozing something it
was ok and could be passed to someone, is this true?

1 replies...

wound care
Posted by cathy
Last Reply March 13, 2012 at 19:18
Started March 3, 2012 at 21:01
I was just told I have mercer about 10 days ago, My wounds are not
longer active, but they are dry and they itch. Is there anything that
will help them go away and stop itching? Is there anything that help
prevent or lessen the severity when or if they show up again?

2 replies...

e coli
Posted by Joan
Last Reply March 12, 2012 at 15:31
Started December 4, 2006 at 16:13
I had a revisitation hip replacement done on the 19th July 2006. It was noticed on the 3rd day after surgery that my wound was weaping and the theatre dressing was taken off and a swab taken. I was transferred to our local cottage hospital 7 days after surgery along with a bag of dressings for my wound. I was transferred back to our main hospital 10 days later as my wound was seriously infected and I was very ill. I actually had the ecoli virus in my wound and after further surgery and 4 weeks of intravenous Vancomyacin I may yet lose this new hip. I have been extremely distressed by this whole experience and I feel totally let down. Is there anyone else out there feeling as I do?

5 replies...

MRSE- from THR
Posted by Cindi
Last Reply March 10, 2012
Started March 8, 2012 at 05:11
My husband had a THR on 1/9/2012. Within 2 hours developed high fever.
Surgery su
It developed a seroma that tested positive for MRSE. 1/27/2012 his prosthesis was
removed and antibiotic spacer was put in. He has been put on IV vancomycin for
6 weeks thru a PIcc line. His numbers has been fluctuating up and down. The
orthopedist wants to break for 2 weeks and then go back to surgery to have a hip
I have questions about the accuracy of these tests. Can the MRSE become

1 replies...

re-occuring MRSA boils on skin
Posted by nate paint
Last Reply February 28, 2012 at 20:00
Started February 28, 2012 at 20:00
I am a 30 year old male having re-occuring infection of mrsa under my skin near my calves/ thighs. it starts out as an ingrown hair or pimple, then half the time becomes infected and inflamed leading to the growth of the staff boil. i tame it with a round of bactrim and the boils go away until a few weeks later and theres another one starting. They leave huge scars and without the bactrim i fear they will eat all the muscles in my legs out from under me, so to speak. will this ever go away completely and am i going about this the right way. I have a very little income and no insurance.the bactrim comes from my mother, so to sum up, what should i expect down the road when the antibiotic stops working.

0 replies...

Posted by marlyn carter
Last Reply February 27, 2012 at 16:18
Started February 27, 2012 at 16:18
my son has had mrsa for 2 years now after going into hospitel, i got him clear after putting a cup of bleach in the barth water rincing with warm water, he went back into hospitel for a opperation and has now got it again will it go to his bones

0 replies...

Life without a hip
Posted by Phil
Last Reply February 23, 2012 at 18:05
Started February 23, 2012 at 18:05
After a hip replacement I contracted MRSA and flesh eating bacteria. The hip was removed. I have been told there is a possibility I may have to live without a hip. I would love feedback on what quality of life to expect.

0 replies...

Chest wound re-opened after 7 years
Posted by Lindsey
Last Reply February 23, 2012 at 08:22
Started August 11, 2010 at 21:14
My mother had a heart bypass 8 years ago and contracted MRSA. She went through absolute horific months ahead being cut open again on several ocassions. After approximately 2 years, the wound healed. Over the last couple of weeks she has had pain in her chest and been to the doctors a couple of times, only to be given pain killers and sleeping tablets. 2 days ago, her scar opened again and she had a swab taken. She has been to the doctos today to be told that her MRSA has returned and she has to see a consultant. She is obviously at her wits end and is thinking about the worst possible outcome. Has anybody experienced this and how has it been treated.

4 replies...

Posted by Carol
Last Reply February 23, 2012 at 07:58
Started September 29, 2011 at 16:54
After being on different antibiotics for infections I developed C-Diff and after one round of medication did not work I was put on Vancocin for ten days. Five days into the medication I have developed severe pain in my hip & knee joints in my right leg and pain and swelling in my hands and wrists. The pain is so severe it wakes me up at night. It is hard to grip anything or even type this. I am praying it is just from the vancocin, but yet I can not stop taking it as this is sort of a last resort to get rid of the C-diff which rates right up there with MRSA. The doctor is running tests for RA and other viruses that may be the culprit. If anyone has any suggestions I could really use the help, I am about to go nuts just from the pain. I had five children without any type of medication etc. and what ever is going on now is awful. Having my children was a piece of cake compared to this. I am only 42- Please help.

2 replies...

Posted by melanie
Last Reply February 22, 2012 at 04:37
Started February 13, 2012 at 16:22
ive heard garlic is real good for mrsa in bathing and putting it on the spot is this true and if not can u please tell me something that can help i get it at least onced a month and if i take alot of pills i get rid of it just for it to come back i want something i can take to keep it out of my system

1 replies...

Posted by lynn rivera
Last Reply February 22, 2012 at 03:26
Started February 22, 2012 at 03:26
I have psuedemona putida and staph in sinuses since december after nose job and septum surgery. Tremendous pain in sinuses and horrible headache, been on picc line iv antibiotics for 3 weeks and feel horrible. First picc hit a nerve and ended up with blood clots, now on coumadin too. Second picc hurts all the time. Desperate to try oral antibiotic and get rid fo the pic line. I tried cipro and levofluxic before iv therapy and they did not work. Have heard good things about zyvox, does anybody know if it works? email at

0 replies...

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