MRSA Superbug Forum

Welcome to the MRSA superbug bacteria infection open discussion forum UK. Please feel free to start a new topic or reply to any existing topics. No need to register to use these forums. Just feel free to share your experiences of MRSA, its causes, effects, symptoms, prognosis and hospital treatment etc.

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Posted by Ian Thorp
Last Reply March 20, 2008
Started July 1, 2004 at 11:05
I like most of us went into hospital for minor treatment to my big toe and ended up (seven months on now) the victim of five operations to the right foot to try to remove the infection. Throughout my periods in hospital I took digital photographs of my wounds and even have some on my mobile 'phone regarding poor conditions in A&E. The photos I took with my camera I presented in a folder and CD to the 'tissue viability' nurse so she could show trainees how vacuum dressings work. My question is where do you stsrt to get someone to acknokwledge that you have been infected, through no fault of your own, and where do you go from there? Needless to say I have lost my job and pretty much my previous lifestyle due to this, am still on antibiotics and regular dressing changes.Hospitals really are getting away with murder.Any help would be most welcome. Many thanks in advance to whoever may be out there.

2 replies...

Necrotizing Folliculitis???? Help!
Posted by Cheranna
Last Reply March 19, 2008 at 09:53
Started March 18, 2008 at 21:31
I need to know if anyone has heard of this disease necrotizing folliculitis? I started out with folliculitis on my arms and it went to my neck and part of my face. It was treated with antibiotics and ointments. I ended up on 5 antibiotics and I'm still having trouble. Beginning of March I felt indentations on my scalp, then lesions that filled with fluid. They would break and continuously come back and fill up. The derm said I'd have to be on antibiotics for a lengthy time, if they didn't work, I'd have to have it cut out. He says it's the glands in the head leaking to the outside of my scalp. I go for a swab on Thursday...finally to see if it's MRSA. I am pretty sure it is, I've had all of this since Dec 4th. The new diagnosis of necrotizing folliculitis was given yesterday the 17th. What am I to believe? The culture will tell if it's MRSA. Has anyone heard of this?? I really need to hear from someone!!

1 replies...

Outside of Hospital??
Posted by Linda
Last Reply March 17, 2008
Started March 16, 2008 at 12:41
Please could someone clarify - All the information that I have read refers to MRSA linked with hospitals. If someone, who is a resident in a Nursing Home has open sores (and is being treated), but has not been into a hospital, can the sores of that person develop MRSA?

If so, how would I know?

Thank you for any advice or information

6 replies...

Posted by Realist
Last Reply March 17, 2008
Started March 30, 2005 at 13:59
There seems to be a lot of blame being directed at the NHS.
I have recently lost a loved one to MRSA so, I know the pain too.

However, dont you people realise that there is nothing that can be done to irradicate MRSA from hospitals. It is (in fact) impossible.

In practical terms, the only thing that can be done in hospitals is REDUCE the chances of contracting MRSA.

Even before MRSA was unheard of, didnt people still die of infections? I think you'll find they did.
It is a sad fact but 'Staphylococcus aureus' has evolved
and there is nothing gonna change that!

So please, stop pointing the finger at hard-working, dedicated teams of health professionals, who are striving to take control of a 'no win' situation.

My condolences to you all.

17 replies...

mrsa in nursing homes
Posted by jean
Last Reply March 16, 2008 at 22:31
Started March 16, 2008 at 13:48
my son resides in a nursing home from TBI. he contract mrsa in the hospital shortly after the auto accident. it has reoccured several times over the past year and half, startin around the g-tube site. we have done everything except stand on our head to stay on them about keeping this site clean. everything must have a doctor order to do anything. what can i do or who can i call. help

1 replies...

Posted by Roger
Last Reply March 16, 2008 at 02:22
Started October 25, 2004 at 21:17
Is it true that as an seriously infected patient I lose the right to claim against the offending N H S trust after three years although the infection was still rampant and the damage it caused could not be assessed for five years.

14 replies...

Tea Tree Oil
Posted by Sharon Huyshe
Last Reply March 15, 2008 at 14:17
Started March 7, 2006 at 15:07
I thought that members might be interested to hear the success I have had against the MRSA infection I developed.

Back in May 2005 I badly broke my left shin. The fractured bone came through the front of my leg & I was admitted to hospital where I underwent emergency surgery to have the bone pinned from knee to ankle. I was in hospital for a week and since then have had to learn to walk again and have gone through unbelievable pain only alleviated by morphine and codeine.

The wound where the bone came through refused to heal and I was diagnosed as having contracted MRSA. All sorts of dressings were tried silver and many others with no noticeable effect. I had very bad oedema and had to keep my leg elevated for long periods.

A member of the medical team that has been treating me told me how they had heard that tea tree oil was being used successfully in various hospices but that it wasnt allowed to be recommended it as it isnt under licence i.e. no drug company is... read more

1 replies...

How To Complain
Posted by Tina Rowley
Last Reply March 14, 2008 at 19:28
Started July 26, 2005 at 11:51
Interesting article in today's Daily Express by Rachel Baird about compaints about hospitals. Apparently there are thousands of complaints piling up at the Health Care Commission and thousands more have complained to the Health Service Ombudsman about doctors and hospitals. Many patients who complain about the NHS face unacceptable barriers in getting a satisfactory local response from health care providers. All too often service providers react defensively to complaints instead of treating them as opportunities to learn and improve their service. One reader said. "The complaints system is biased towards NHS requirements and full of spin. They give you an explaination that you know in your heart is untrue - and platitudinous statements and assurances that don't mean anything" ( Havn't we all been there? ) You can contact the Commission on 08456013012 or email
For more advice


3 replies...

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Last Reply March 14, 2008 at 15:31
Started March 14, 2008 at 15:31
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0 replies...

Posted by Mark - Kent
Last Reply March 13, 2008 at 14:03
Started February 18, 2008 at 14:11
Does anyone have any stories from a certain hospitals in South East London anout the MRSA stories please.

2 replies...

Multiple repairs after hysterectomy and MRSA
Posted by Susan R
Last Reply March 10, 2008 at 22:13
Started March 5, 2008 at 01:55
Does anyone know if septicaemia and septic shock caused by mrsa acquired during an operation would affect the healing of internal tissues? I had a hysterectomy only a year ago which seemed to go ok on the day but the next day I was given a blood transfusion and taken back to theatre for an emergency operation because they thought I had internal bleeding. Im not sure if I did have internal bleeding as well or they just misdiagnosed the symptoms of the septicaemia but by the day after that I was in the High Dependency Unit on intra veineous antibiotics for the mrsa. The external scars have healed ok but I have had to go back twice since then for internal repairs and bladder surgery which will not stay fixed. The last time was only 10 weeks ago and already I can tell its falling to bits again. I know there is a limit to how many repairs they can do so there seems to be a distinct possibility that I may never be properly fixed. I just wondered is it just something wrong with m... read more

3 replies...

Posted by GINNY
Last Reply March 10, 2008 at 22:00
Started March 9, 2008 at 21:38
Christine: I am just starting out on your Journey, my mum went into hosital 7 weeks ago for a hip replacment and to mend a broken leg, she has diabetes and kidney failure. I saw her two weeks ago, it broke my heart, she asked me to end her life! I found the whole thing so distressing. She was soiling the sheets and all sorts. She is such a proud women, but has lost the will to live. And just today we have been told that she has MRSA. I live in london and she is in cornwall so difficult to be on the case all the time, I am not sure how much time she has, but the hospital is such an awful place for her and how much can one person take. she has been on prozac for about 10 days now and my sister says that she is more perky in herselve but has no interest in talking to the doctors and makes no effort to get out of bed or do her pysio. she is 77 years old. I am finding it all very difficult. I am sorry that you lost your mother in such an awful situation. x IS ANYONE ELSE GOING THROUGH T... read more

2 replies...

my mother is so ill
Posted by linda mccafferty
Last Reply March 9, 2008 at 23:49
Started July 17, 2005 at 23:48
my mother helen mccafferty has been in hospital for 10 weeks,(GLASGOW ROYAL INFIMARY)SHE WAS TRANSFERRED TO LIGHTBURN HOSPITAL on the 9th of july she had only been a few days when we were told she had m.r.s.a in her eye my mother is very ill she had went into hospital with heart failure she is 82 ysr old now she has renal failure,diabetes,M.R.S.A my mother had sore eye in royal infimary it was swabbed we were told it was a infection then she took urine infection,loose bowels ,she was put in a side room in ward 4 and told she was on a wide spectron antibiotic to deal with infection my mother was very ill she was very dehydrated (i thought my mother was going to die )the minister was sent to give last rites over the days she seemed to look better but was very confused in all that time we were never told what infection my mother had now she is in lightburn hospital we have been told she has M.R.S.A my mother is very ill very confused, i want my mothers name to be added my mother ... read more

17 replies...

Nicola Sturgeon
Posted by linda mccafferty
Last Reply March 8, 2008 at 14:33
Started February 18, 2008
I see Health secretary Nicola Strugeon says " it is only fair"that veterans with health problems as a result of their time in the Armed Forces should recieve priority treatment in the NHS.......... is it "fair"that there is a chance that they will become infected with MRSA , C-Diff , and many more HAI's, in our NHS hospitals .

3 replies...

Posted by tommy
Last Reply March 6, 2008 at 15:24
Started June 4, 2006 at 01:06
My father also died due to septasemia, the hospital told us that everything was going as it should. he was to go through a triple bi-pass, they could only operate on one artery, but were happy with the main artery but the other two were seriously decayed. the Amethysts told me that they were considering to bring him around within 48 hours, they said that he would be in the i.c.u for no more than 48 hours. and the sergeant constantly kept in contact with his condition and in 5 days I noticed a tube that seemed to have problems with the bowels, i has asked the nurse what was this?... i was told that it was because of an infection, we were also told that my father "had a heart like a young man", but on the third day of his operation, i was speaking with my father and his eyes were opening, i had asked the nurse "he is opening his eyes" she replied "that by talking to him as they reduced some of the drugs that he is morelikly to hear you and that is why he is responding" on the 5th day ... read more

9 replies...

latest prognosis..LOL
Posted by alye
Last Reply March 4, 2008 at 11:49
Started February 23, 2007 at 01:14
Having been on cocktail of drugs since Jan 16th and god awful side effects etc etc....I saw my consultant today and have now got to go back into hosp for a reversal of the op.and removal of abcess (had 3rd nose op in dec to try and rectify previous ops on broken nose damage and developed MRSA.) They are now going to take out the gortex which was put in to reshape the nose because my system has supposedly rejected it. This was put in after having removed previous damaged cartiledge so god knows what sort of nose shapeif any I will end up with!!! Questions that I cant answer (and it really p**'s me off are...Why was I discharged and then 2 weeks later found to have an "infection" (only when asked for path report was told it was MRSA) Why after 6 weeks have they not taken further swabs/blood tests...I am diabetic which apparently according to various messages on these boards is a significant facter,why when the consultant examined me today didnt wear gloves, wash hands or take any pre... read more

5 replies...

Posted by Aziz
Last Reply March 1, 2008 at 11:43
Started February 28, 2008 at 23:09
My father had a successful triple heart bypass operation 2 months ago. He spent 11 days in intensive care and when they moved him to the HDU, they discovered that he was carrying MRSA. The hospital treated it and said he was clear and transferred him to another local hospital after a month. However, on arriving at this local hospital, they found him he still had it. He was discharged last week. He seems OK from the operation and we have been told the MRSA is not a problem. However, there has been no follow up check to see if he is free of it. His Group Practice is saying that none of the GPs can visit him and that he can't go to see them. Can somebody tell me whom I can speak to to get some clear guidance on this. I feel we've been left in the lurch. Nobody wants to take responsibility. Are we at home at risk? There are little children who come to visit.

2 replies...

Posted by paula
Last Reply February 29, 2008 at 20:44
Started February 29, 2008 at 12:55
my dad has just been taken in hospital for a blood clot removing from his leg, but has got infected by mrsa in his groin where they went in to clear the block only trouble is hes not eating anything as he fees sick all the time so cant get any food down hes on a drip with the strongest anti bio they have has anyone any advice on what i can get him to eat and can you have multi vits to boost your immune syshes got high temp and looks depresed are these the side effects

1 replies...

Posted by Marilyn
Last Reply February 29, 2008 at 11:24
Started February 23, 2008 at 12:34
I have MRSA now and will be going to get it lanced today as it is not healing. I am scheduled to have a knee replacement in about 2 weeks. Is the percentage greater for people that get MRSA to get infection when they have surgery?

2 replies...

death cert
Posted by tas
Last Reply February 27, 2008 at 16:06
Started February 22, 2008 at 16:14
could someone please teel me why MRSA isnt put down on the death cert as a contributary cause of death?

i just recived my mums death cert and i couldnt believe that there was no mention of MRSA!!!!

they put down bronchopneumonia as cause of death.
needless to say i am hopping mad, and am sending off for a full copy of the coroners report.

i KNOW my mum had MRSA when she died!
so why is there no mention of this?
does this happen all the time?

7 replies...

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