MRSA Superbug Forum

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MRSA and Acute Lymphoblastic Leukaemia
Posted by Angela
Last Reply April 4, 2007 at 20:01
Started April 4, 2007 at 08:58
Hi there
My 19 year old daughter has been battling ALL since July last year and got through various infections, 6 months of chemo and radiotherapy. She has just gone back into hospital for the Consolidation phase of chemo and we've been told that they've found MRSA on a nose swab. I'm obviously really concerned and was wondering if there is an further information anyone can give me?

1 replies...

Query MRSA ?
Posted by mags
Last Reply April 4, 2007 at 04:58
Started February 12, 2007 at 13:12
Hi..just found the forum and iam looking for answers really as i dont seem to be getting any from the NHS hopefully somebody on the forum can help me & thank you in advance for any help.
I had an op on the 22nd off dec to remove a lypoma , everything was ok untill the 30th when i was really ill with a fever (intermitantly sweating/freezing) the wound area ( back off shoulder) was red and swollen and the redness was traveling down my arm

I called NHS 24 & they gave me appointment to go to local hospital ( 4am in morning ) when i was finnally seen by a nurse she gave me antibiotics.
I took these for 2 days then the wound started leaking puss & blood i called NHS 24 they said i had to give anti B's time to work and if the puss is yellow rather than green !!! then it was ok (in highnsite iam raging)
On the 4th jan i couldnt stand it any longer & called my GP she sent a nurse out.
The wound was swabbed and apparently the results are the puss is sterile (am i correct in thinking th... read more

22 replies...

Journalist Enquiry
Posted by Waseem Mirza
Last Reply April 3, 2007 at 17:41
Started April 3, 2007 at 17:41
I'm looking to make contact with people who have been affected by MRSA (or other superbugs) in the Cambridgeshire area.

Please email me at wamirza at

Many thanks

0 replies...

MRSA superbugs
Posted by Tony Malory
Last Reply April 3, 2007 at 14:01
Started April 3, 2007 at 14:01
If the most vulnerable people are the elderly does it not seem that as the elderly population increases (the baby boomers) then surely the superbug rates will increase in line with population?

0 replies...

Hospital discharge
Posted by Janet
Last Reply April 3, 2007 at 01:02
Started August 15, 2004 at 22:46
I dont have MRSA but I am going in to hospital in a fortnight for a gallbladder op. I have a very low immune system and I am terrified of what might happen. I want to leave the day after the operation although I've been told I will have to stay in 2 - 3 days. Does anyone know what happens if I discharge myself then become ill or infected??

10 replies...

Cause for concern?
Posted by Shaye
Last Reply April 2, 2007 at 23:37
Started November 7, 2006 at 03:55
I was wondering if there was anyone out there that was diagnosed with MRSA that may have had a reoccourence and what I should look for. I was hospitalized for a period of 2 1/2 weeks with MRSA at the end of last year (late nov 06) and as treatment continued out of the hospital, i learned that the infection had settled in my spine. Recently I have had excruciating back pains and lack of mobility. After many tests, I have learned that the t8 section of my spine is being slowly deteriorated. This is where the infection had settled.
Basically, I was wondering if there is any way to know for sure if this is the MRSA presenting again or if it could be something else. Anyone?

1 replies...

Police action and other queries
Posted by Mike
Last Reply April 2, 2007 at 09:58
Started March 28, 2007 at 20:13
Hi all,

My mother died suddenly of MRSA whilst recovering from an operation in January. At the time we thought C-Diff was responsible but the samples of her faeces taken from her were lost and nothing could be proved.

After mom had been cremated, I got a call from the hospital to say that the results of her blood tests had shown that MRSA had been found in her blood stream. To be honest, her death came as such a shock that I hadn't asked about blood (or other) tests at the time. So mom is another death where MRSA has not been recorded on her death certificate.

My questions are, is there an estimated figure of how many deaths are caused by mrsa and not recorded? What is the estimated overall death rate by hospital acquired infections thought to be?

And the other one that is troubling me: Have any investigations by police ever been carried out? How is it known whether or not any crime has been commited if no legal investigation is carried out?

Does anyone else think tha... read more

2 replies...

6 Year Old With MRSA
Posted by Beverli
Last Reply April 1, 2007 at 04:23
Started March 24, 2007 at 02:47
HELP ME!!! I am at the end of my rope. My 6 year old daughter was diagnosised with MRSA last summer after having strep throat. She began experiencing pain in her hips knees, ankles and wrist and a lack of appetite. The pain was so bad that she had to be carried from the bed to the bathroom in the morning. However, as the day went on she was able to walk on her own but, at night she would begin to experience the same joint pain all over again. She was treated with clyndimicin (sp?) for two weeks and she seemed to be ok. I am sad to say that, as of this writing, she is again complaining about hip, knee, wrist, finger pain, rib pain, stomach aches and a hard time breathing. I have taken her to the doctor to be tested for MRSA several times but, the results come back normal. Just tonight I discovered that there is a form of MRSA that infects the bones and joints and based on the information one that has this form of MRSA should be treated with IV antibotics and not oral. Does ... read more

6 replies...

Posted by moderator
Last Reply March 31, 2007 at 15:07
Started March 28, 2007 at 22:37
simon tricia hazel josie what next at least use one name please

3 replies...

the problem with the NHS
Posted by A concerned health worker
Last Reply March 30, 2007 at 22:10
Started March 11, 2007 at 23:58
Reading various posts it seems to me that people want to find out if the hospital is responsible.
I work in a hospital, and my opinion is that it's very hard to prove mistakes.
I regularly see specimens getting lost and therefore delayed results and treatments.
Do you know that some hospitals don't process MRSA screening on the weekend. that means that the patient and ward won't know if someone has MRSA for 2/3 days!
The public don't know the half of it. It makes my blood boil when people 'thank' doctors and nurses etc. The NHS can do so much better. It's criminal that nobody will acknowledge it's failings. Unless this happens, it won't improve.
The whole thing's a lottery!

6 replies...

Posted by nick
Last Reply March 30, 2007 at 21:44
Started March 30, 2007 at 10:23
i had a sinus operation at the turn of the century, complained to the surgeon of feeling rotten but was told i should expect nothing more after a big op. Turfed out of an open ward (very open to visitors), bleeding black gunge and swallowing blood down the back of my throat, then had 11 weeks ordered off work by my GP who was at a loss to know what to do. I haemorraged badly up in my nose/frontal lobe area and needed surgery at my usual local hospital. Got progressively worse for years afterwards but at the local hospital, found out i had glandular fever + something else hush hush couldn't find out, they would not tell me.
Later found out i had something worse but told no way of proving who/where/when (like most people) so no chance of sueing the health service (like they have loads of money eh?).
Later, i moved to London - after mess-ups from doctors in Watford for what they called "cellulitis", my leg looked like Michael Winners. Twice had to return to hospital, eventually... read more

1 replies...

Posted by Tricia
Last Reply March 27, 2007 at 23:20
Started March 22, 2007
dear all ,
i stumbled across this site by accident ,after reading many of the post i was ashamed to be a nurse , however a some of us are taking things very seriously myself and 3 of my co workers no longer go to and from the hospital in our uniforms and we all add a little dettol to the wash to hopefully kill anything on the uniform. we have nursed patients with mrsa and in my opinion the worst thing for them to cope with is the isolation , i have been given the job of infection control on the ward and i intend to do my upmost to try to clean up this ward .hopefully if i have good results it will with any luck pass on through the hospital.sadly i lost another lady last week but as you know mrsa wont make an apperance on the death certificate . i will be passing deatails of this site onto my co workers because when you look at a site like this it brings it home to you just how many people have been affected
i would like to wish everyone well i w... read more

7 replies...

Posted by josie
Last Reply March 27, 2007 at 23:10
Started March 15, 2007 at 01:18
dear bev,
thanks for you help mum died at 10oclock tonight i have told the nurses that if mrsa is not on the death certificate we will be taking the matter further. she told us it would probly say her death was due to multipal organ failiure caused by septicemia but we will have to wait for the path report , i will let you know

6 replies...

English language problem
Posted by brian
Last Reply March 27, 2007
Started March 24, 2007 at 02:15
Unfortunately most non uk hospital staff do not have enough command of the english language to understand "what is actually said" Often they hear certain words but cannot comprehend clearly. If you don't believe me check and ask the doctors and nurses to feed back what you have just told the. Its an eye opener and fatal because they often don't. Do not assume.... My experiences from Epsom Hospital and Kingston as patient and as carer 2006-2007.
I don't believe, from my experience, more than a few (i didn't meet any actually but hey surely that can't be 100%) doctors or nurses would pass the Cambridge English basic cert exam- perhaps thats because high percent bank staff...

2 replies...

mrs a in the lungs
Posted by caroilne
Last Reply March 26, 2007 at 12:28
Started February 23, 2007 at 13:02
my husband as been in hospital since the 27 janeuary he as asma and was taken in ti scuthope hospital he cought mrsa in there after 5 days i was todl it was in is sputem they put him in a room ov is own and he was told to wash in antibactiral washes and put the spesial cream around is nose a few days later he was told he could come home i refused to have him home and then i got a call from the infection deasese control nurse telling me gary was fine to come home is treatment was finished gary came home the nexst morning he got up and was taking a bath in the antibactirial wash and told me he had to do it for 2 more days and then after a week go to is own doctor for a test the day after the test gary had to be rushed back in to hospital with breathing difucultys he was admited to the same ward on a normal ward not in a side room then after 3 days i was told he was being transferd to goole hospital were after 3 days ov being in there we were told that gary had mrsa in is lung i am dis... read more

5 replies...

Posted by Linda Calderwood-Lea
Last Reply March 25, 2007 at 12:24
Started December 21, 2006 at 15:42
I went into King's College Hospital, London on 13 October 2003 for a stomach complaint. Was discharged on 07 November. Apparently, during this time, I contracted MRSA via a Venflon site. The hospital did not inform me of this fact. The Consultant stated that I may pick up something else! Five days' later I collapsed at home and was rushed to ITU. Two days later, after a MRI scan, it was noted that I had an epidural abcess - C2/C3 (top of spine). I also had septicaemia. I almost died. The hospital had no idea what the problem was. They performed a laminectomy which was delayed by several days. The result of which has left me quadriplegic. I attempted to sue the hospital for clinical negligence but, after paying my solicitor (Charles Russell LLP) 17,000 they informed me (after 2 years') that I did not have a viable claim. I have therefore received no compensation or an apology from the hospital. I have lost my dignity and I am confined to a wheelchair for the rest of my lif... read more

5 replies...

Posted by to MRSA Action UK
Last Reply March 24, 2007 at 23:34
Started March 24, 2007 at 21:48
I have just read with interest your website I think it is most remarkable that you have managed to secure the networking reception at the conference 28th March you must be very proud of the hard work that you put in to achieve that recognition. I have recently lost my very dear mother in a London hospital to C Diff and although i live Stateside I am flying to your country late tomorrow and wondered if there was any chance i could meet with you guys. I will keep checking this forum whilst i am travelling for any updates

1 replies...

Wound infection treatment
Posted by Emma G
Last Reply March 24, 2007 at 12:56
Started March 15, 2007 at 19:32

Hi there, I was wondering if you could help me. My brother has been out of hospital for a month now following a bowel operation. He has been very unwell and his wound has been passing a lot of fluids. He has been to the doctors alot - well now they send someone to the house as he is too unwell to make it to the surgery. He was first told he had a `little infection` and it was nothing to worry about and traeted with flucloxicillan. The doctor arrived about a week ago and let slip that he was mrsa positive in his wound, which they had found from hospital tests (so have known about for over a month). They`ve given him folic acid to help as they said he`s heading towards anemia, other than that they`ve given him nothing to treat it. I cant understand how this can be right. The local nurse came out and said she is appalled by his lack of treatment and said she`d check things out but has still not been back to us. Sorry this is getting a bit long,,, but what I r... read more

12 replies...

hospital cleanliness
Posted by graham
Last Reply March 22, 2007 at 21:29
Started July 14, 2004 at 12:44
Hospitals around the world (including 3rd world) look after their patient welfare and cleanliness when using the toilet by providing a Paper Toilet Seat Cover Dispenser in each cubicle.
One of the most difficult places to keep permanently clean must be the Toilet Seats. Patient after patient after patient, sitting on the same seats one after the other is probably the most unhygienic act constantly performed every few minutes in hopitals throughout the UK. The toilet seat must also be the easiest place to pick up (and pass on to others) germs, bacteria and super-bugs such as MRSA.
Unfortunately UK Hospitals do not provide their patients or their staff with this simple toilet protection, so extremely effective in the struggle to stop the transfer of BUGS from one patient to another and from one ward to ward.
YET, without any major capital expenditure, Paper Toilet Seat Covers and Dispensers from just 3p per day are easily available here in the UK. So if you are 'In the Know', who ... read more

17 replies...

flushable toilet seat covers in hospitals
Posted by steven bradley
Last Reply March 22, 2007 at 19:13
Started March 21, 2007 at 22:45
I would like to ask the public and more so ladies if you would feel better to see flushable toilet seat covers in hospital toilets , with the bugs and bacteria we are so scared of . At a cost of a penny a sheet can we afford to have them , if America can have them in all there loo's are we missing something ?, a good place to visit .

2 replies...

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