MRSA Superbug Forum

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our baby died of mrsa
Posted by Lianne and Andy
Last Reply May 8, 2006 at 11:34
Started November 28, 2005 at 10:39
our baby was born on 2nd december 2004 but died on the 6th december, the doctors said it was septicimia, 6 months later i was told it was MRSA, it would have been his first birthday in 4 days, i miss him so much, i have recently found out im pregnant again and im scared that it will happen again, how do i prevent it?

9 replies...

Posted by guj
Last Reply May 6, 2006 at 14:38
Started February 4, 2006 at 16:03
Hi all
My father passed away 22nd Jan,he was admitted to hospital on the 7th with fluid on the lung.After two drains and several tests,there was a slight improvement and the doctors could find nothing in his urine,sputum or even the fluid drain.
On the 20th i arrived to visit and he told me to stay away from him as he had MRSA,That evening he was told he had a week to live....When i confronted the doctor,she replied 48 hours max.
I was told it was mrsa sceptacimia,he died in my arms 51 hours later
When i saw the DC,it said pneumonia!!!! I said i wouldnt leave until this was changed,which after 3 hours they did.
So,i have a DC with mrsa sceptacimia and am at present pursuing this with the hospital etc...I want justice for the premature loss of my dad!!

13 replies...

Posted by chris
Last Reply May 5, 2006 at 08:46
Started May 3, 2006 at 11:52
Hi Bev thanks for your reply my dads in Russel Hall Hospital in Dudley West Midlands. I keep reading that i can see the notes but the staff are just making things very difficult, they say things like i wouldnt understand the notes any way etc. Every day there is a different method for gettin to read the notes that we can see sat on the trolley in a green folder! Sadly i am still empty handed and the MRSA is spreading.

7 replies...

Nurses say 'why bother?'
Posted by Ruth Wollacott
Last Reply May 4, 2006 at 15:58
Started May 4, 2006 at 15:40
A study of senior staff nurses' perceptions about MRSA.
Lines L
Nurs Times. 2006 Apr 11-17 ; 102(15): 32-5

AIM: To examine the extent to which staff nurses feel that MRSA is out of control and that any attempts by them to control it are unnecessary. METHOD: A qualitative research paradigm with semi-structured interviews to examine the perceptions, attitudes and beliefs of 10 senior staff nurses. RESULTS: In the study, 60% of participants believe that MRSA is out of control and state 'why should they bother worrying about it'. Furthermore, 80% of participants commented that prescribed courses of nasal mupirocin were frequently missed. The perception is that IV treatments were more important and effective than topical agents. CONCLUSION: The study has established that a small section of experienced staff nurses perceive MRSA to be out of control and they are not overly concerned about its management.

ht... read more

1 replies...

Blair lives in cuckoo land !
Posted by Bev
Last Reply May 4, 2006 at 14:06
Started April 18, 2006 at 16:22
PM tells health staff to 'hold nerve' for NHS
TONY BLAIR today told doctors, nurses, managers and health service workers to hold their nerve and build a new NHS "for 2008 not for 1948".

The Prime Minister dismissed claims that the service was in crisis and said that while there were problems they could be solved.

He said he would not back down from his plans to modernise the National Health Service, despite crippling financial debts leading to job losses at local level.

Mr Blair told an audience of health service professionals that some people - including the "Doctors for Reform" group - said he was not going far enough.

He said: "The NHS is an important British institution. But it will not be preserved by neglect. It will survive and prosper if it changes as the population it serves changes.

"There is no need at all to revisit the way we fund the service. Progressive taxation preserves equity, which is the reason the NHS has retained the affection of the people... read more

3 replies...

Posted by peter saunders
Last Reply May 4, 2006 at 14:01
Started April 22, 2006 at 17:54
can anyone tell me if it is true that infection can last for a lifetime
Many thanks

1 replies...

breaching NHS complaints procedures
Posted by Bev
Last Reply May 4, 2006 at 13:58
Started May 4, 2006 at 13:58
i have been asked to compile a list of trusts breaching core standards of the NHS complaints procedure policy ~ it quite clearly states that you cannot use PALS and the COMPLAINTS procedure AT THE SAME TIME about the same concern
PENNINE TRUST breach this because the complaints manager is also the PPI manager and the PALS manager
i know Frimley Park Hospital are also in breach
i would like to hear from anyone at any other trusts who feel their complaint is not being handled properly ~ you should not be being dealt with by PALS once a formal complaint has been lodged you should only be being dealt with by the complaints dept and they should also have a complaints manager who has nothing to do with PALS
please add the hospital/trust name to this list or email me on
thanks for your help on this ~

0 replies...

Going into Care with MRSA
Posted by Jane
Last Reply May 4, 2006 at 12:27
Started May 4, 2006 at 10:31
My 84 year old mother had emergency surgery 4 weeks ago which has resulted in her having a colostomy. She has also been diagnosed with MRSA initially on her skin but also in the wound and stoma. Although she is still testing positive on all these sites the hospital say she is OK to go home. She has recovered well from the surgery but is not quite strong enough to return, on her own, to her flat. Her main need relates to getting accustomed to changing the bag rather than being ill, although she is still a little weak. The hospital has suggested she could go into a care home for a while. Does anyone have any experience of whether a care home would take her with MRSA? She is still in isolation in the hospital and there seems little point in her paying to go into care (she does not qualify for free care) if the home will insist she should still be in isolation. I am surprised that while she still has MRSA particularly in the wound/stoma she does not need to be in hospital.

1 replies...

Information access
Posted by Chris
Last Reply May 3, 2006 at 07:40
Started May 2, 2006 at 23:13
Hi all Thanks to all of you for your previous replies it helps not to feel alone battling with the hospital! I finally got an appointment with a doctor yesterday, I was told to wait in a side room and he would speak to me after his round. The doctor entered the room sat down and really defensively ask well what do you want to know. He addressed me as though i was thick but to cut it short he told me that i had nothing to worry about and was very blase. He could not tell me why i hadnt been told or why i or my dad were not entitled to see his notes,he said we would have to write to the hospitals solictors to see the notes and when i quoted patients rights act he said all trusts were different and nobody had asked him for paients files before on the icu. I find this hard to believe. I pointed out all the short fallings of the staff and that on leaving the ward the previous evening the hand cleaning bottle was empty and when i went to use it at 10.30 the followong day the bottle w... read more

1 replies...

Posted by A.Mall
Last Reply May 3, 2006 at 07:40
Started October 25, 2005 at 11:31
Irecieved a copy of hospital policies the does n donts on treating patients how to give medication ect. going by the papers i can honestly say there was a breech of conduct towards my mums care. Im waing to go to hospital for an operation and i am terrified with mrsa lurking in the shadows, Some people will think im being paranoid but truly when i wached my mum die of mrsa its really scary,i think hospitals who employ cleaners should be given training of some sort,it could well save lives if they are checked before given the job.

24 replies...

mrsa - haven't a clue how I got it!!!
Posted by evie
Last Reply May 3, 2006
Started May 3, 2006
I have MRSA, although, it sort of goes in remission and I can have a break from the symptoms for a while, then it will suddenly flare up again. I haven't had an operation, or even been in hospital. However, I came back from holiday abroad with an ear infection which wouldn't clear up, 18 months later MRSA was diagnosed. I need to know if am I in danger of contaminating others, apart from total isolation, how can I be sure that I won't do so.
Also, are there specialists with regard to this area? because the only ones I have seen are related to ear infections.

0 replies...

Posted by Rachel
Last Reply May 2, 2006 at 22:09
Started February 23, 2006 at 20:54
You might have read my post the other day about me discovering that my four year old daughter has got MRSA . Well obviously i have been searching the net for information as the doctor seemed very unsure and quite frankly not that bothered , although i am due to go back tomorrow to ask more questions . All the stuff i have read on here and other sites is fantastic but there seems to be no proper guide lines. The information from the goverment is rubbish. There seems to be so many un answered questions !! Everyone on this site has a different story to tell , but we all have frustions and questions ! Why does the goverment/NHS not care ??? IT MAKES ME SO MAD !!!! I know you probably all agree with me but i just wanted to vent my anger. Thanks. X

1 replies...

MRSA Urinary Tract
Posted by Tracy
Last Reply May 2, 2006 at 20:16
Started May 2, 2006 at 20:16
My father suffered acute renal failure in November 2005, mainly due to the fact that he had ignored signs of illness for such a long time (having never been to the doctors in over 40 years)! He's always been a very strong man and didn't take well to being ill. His kidney function was 1400 - its now down to just over 300, but has taken this long and is probably going to end up in him having dialysis at some point in the future. As a result of the kidney failure, he has had an enlarged prostate, which has been operated on and also polyps removed from the large and small intestine. He is contstantly monitored; blood tests every two weeks and routine visits to each specialist. He has had a swelling to one of his testicles for months now, with no explanation from anyone as to what it might be. He has been short of breath again for a few weeks now, and this culminated in him collapsing on Friday morning. He was admitted to hospital where routing blood and urine tests were carried o... read more

0 replies...

patient information
Posted by chris
Last Reply May 2, 2006 at 14:17
Started April 30, 2006 at 23:53
hi can anyone tell me if there is any reason for ward staff to tell me that i am not allowed to read my dads hospital notes. I am down as his next of kin and he is on an icu. He has been on a ventilator for two weeks and i olny found out yesterday by reading his notes, which at that point were next to his bed, that he tested positive for mrsa. This was not mentioned to me even though i asked if he had any further infections. Today they told me that his notes were for their reference only and even my dad is not entitled to see them. I would not have found out about the mrsa unless i read his notes and the ward nurse said she did not know the proceedure for family reading notes as no one had asked for them before! After pushing her was finally told he had mrsa and that it had spread. Today was the first time a barrier nursing note had been put on his bed even though they have been treating him since thursday, however gloves were still not worn whilst changing the tube in his nec... read more

6 replies...

Posted by Dave
Last Reply May 2, 2006 at 02:52
Started August 1, 2005 at 23:25

17 replies...

Posted by Maria
Last Reply May 2, 2006 at 01:39
Started July 24, 2005 at 14:01
A six month pilot exercise which tested implementation of the National Patient Safety Agency toolkit in six acute trusts has recently been completed. The report (NPSA 2004) into the evaluation is available from www.npsa.nhs/cleanyourhands

This was a well publicised study. The whole report is an eye-opener, see some of the patients comments. Page 81 shows a table of compliance with handwashing. The most statistically reliable data is for the month of December 2003, only 70% of healthcare workers complied with handwashing, REMEMBER PARTICIPANTS KNEW THEY WERE BEING OBSERVED.

2 replies...

information re mrsa
Posted by chris
Last Reply April 30, 2006 at 23:57
Started April 30, 2006 at 23:57
Hi wrote this in the wrong place last night so have just copied on to new post. Have put another new one on today aswell.Hi I have just got home after visiting my dad in ICU he is on a ventilator and been under sedation for two weeks now. In the last two days he seemed to be picking up and the sedation has been lowered I always ask the nurses how the treatment is going if there are any new infections etc and i have been told that everything is going in the right direction however he ie still extremely ill. I read his notes tonight and he has been tested positive for MRSA in his nose, nothing was mentioned about this and when i questioned the nurse she said it was nothing to worry about and they were doing further tests, should i have been informed and should they be treating the MRSA already found?

0 replies...

welsh stats
Posted by Bev
Last Reply April 28, 2006 at 16:56
Started April 28, 2006 at 16:56
'Stay calm over new superbug figures' Apr 28 2006


HEALTH experts urged patients not to panic over superbugs such as MRSA as hospital infection rates were published today.

Data about the number of infections detected by Welsh NHS Trusts have been made available to the public for the first time, and are accessible on a website.

But officials said people could not use the information to compare hospitals’ cleanliness because it did not show where the infections were picked up. They may have been brought on to the ward by patients, but only detected after they were admitted.

Dr Eleri Davies, of the National Public Health Service Wales, said: “I don’t think there is need for excessive concern.

“That isn’t to say that we don’t think that Healthcare Associated Infection is important (HCAI)

“It shouldn’t blight people’s experience of the health services that the first thing they think about is, ‘I’m going to hospital, I’m going to get an HCAI.’
... read more

0 replies...

dont know what to expect
Posted by Ronda Loftin
Last Reply April 27, 2006 at 18:05
Started April 27, 2006 at 18:05
My 14 year old daughter contacted MRSA from swimming in a lake nearby. There were 5 kids who swam to an island. The water is down recently and they all 5 have contacted pimple like bumps and several of them have knots under their arms. Also they all have places that look like chigger bites scattered over their bodies. A few have systys here & there.
I do not know what to expect. She is on Bactrin. Will the chigger like places go away without becoming infected on the outside. What about the syst areas?

0 replies...

Posted by wendy
Last Reply April 27, 2006 at 17:34
Started April 27, 2006 at 17:34
Hello Everyone. I have recently been diagnosed with MRSA and I have a lot of questions. I seem to be getting nowhere with my doctors. My primary care doctor didn't know what was going on so he sent me to an Ifectious diseaes doctor who confirmed I did in fact have MRSA however can't seem to understand why, treated me with an antibiotic (can't rememebr the name but it made my urine very orange) did some blood work and sent me on my way.. I thought it must be gone then and I am cured??? Well not after reading more on the subject to try and figure out what is wrong with my health. Now I am just terrified as a divorced mom with 4 kids and may be facing surgey for a hysterectomy, what do I do??? Where do I turn for answers my doctors seem to know very little about this. I have been continuelly having health problems, boils (that I never had in my life before)stomach pain, hair falling out... the list goes on. I am only 42 and tired of feeling like I am closer to 80. Please an... read more

0 replies...

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